2016 ULF Annual Conference

Conference Registration Now Open!

Please join us for the 2016 ULF Annual Conference, which will bring together families and medical professionals across all of the leukodystrophies. Don’t miss this opportunity to learn, share, and connect!  Great topics and speakers, new event features, roundtable discussions, memorial ceremony, silent and live auctions (including trips!), award ceremony, and much more!

The Conference will be held at the beautiful Embassy Suites Downtown/Old Market in Omaha, Nebraska.

July 28 — Scientific Symposium for Medical Professionals brochure

July 28-30 — Family Conference brochure

Children may attend for no fee, and there will be free childcare offered during day-time hours Thursday through Saturday. Games, art projects, and movies will be included. On Friday, a field trip to the Omaha Children’s Museum is planned for those kids who are interested.

A fabulous wrap-up celebration for everyone will be held at Omaha’s Henry Doorly Zoo and Aquarium. Enjoy the antics of penguins and the thrill of cocktails and dinner under the shark tunnel on Saturday night!

Plan to stay until Sunday, the 31st. Or you may choose to add on a few days to enjoy the many attractions that Omaha has to offer, such as the Joslyn Art Museum – featuring Monet, Pollack, & Chihuly – riverboats, air show on July 31, Lauritzen Gardens, sporting events, and the Durham Museum, the fascinating 1931 Union Station with train exhibits, just 2 blocks from our hotel.

The Embassy Suites Hotel is located at 555 S. 10th Street. Our discounted room rate is $129 plus taxes, which includes the free breakfast buffet and evening cocktails from 5:30 to 7:30 p.m.  The hotel offers a free shuttle to and from the airport. Hotel check-in is 3:00 p.m., and check-out is 12 noon. To make your hotel reservation in the ULF room block, click here or call 402-346-9000. Some accessible rooms are available.

There is an additional ULF room block of accessible rooms at the Hyatt Place, which is about 1.5 blocks from Embassy Suites. The Hyatt Place phone number is 402-513-5500 or click here to make an on-line reservation. That room rate is also $129 plus taxes.

The Myelin Project is offering some scholarship funding for those affected by ALD or AMN. Check here for details.

Please sign up today!  Registration closes on July 11, 2016.


To register for the Family Conference, click here.

To register for the Scientific Symposium, click here.