For Families

The ULF looks forward to welcoming you to the 2017 ULF Annual Family Conference July 28-29 at The Commons Hotel in Minneapolis.

Some of the many topic areas to be addressed include:  Vanishing White Matter, AMN, ALD, integrative medicine, newborn screening, spasticity, bone marrow transplant, grief support, gene therapy, wheelchair wellness, seizure management, disability rights and entitlements, school services, advocacy, clinical trials, and genetic counseling.

Here is our Family Conference Brochure. There will be some minor changes to the line-up by late July. The brochure was mailed out to members and past conference attendees. Others may request one by calling the ULF office.

Family registration pricing:

  • Member Registration Rate:  $90 per adult  (Not a member? Join ULF now & add $35.)
  • Full Registration Rate:  $200 per adult
  • There is no fee for children to attend.

Registration fees do not include hotel, travel, parking, or airport transportation. The registration link will take you to PayPal, where you can use a credit card or your PayPal account, if you have one. Another payment option is to print off the registration form and mail it in with a check. Registration fees are not refundable.

Register here!

If interested, please bring an item for the live or silent auction and drop it off at the registration table when you arrive. All auction proceeds benefit ULF research.

Thursday Evening:

5:30 – 6:15      Cocktail Reception
6:15 – 8:00      Dinner with the Medical Professionals


8:00 – 5:00     Family Sessions & Break-out Groups, plus Lunch & Live Auction
6:00 – 7:30     Service Award & Dinner
7:30 – 8:30     Informal Group Discussions for Families & Doctors


8:30 – 5:00     Family Sessions, Break-out Groups, Lunch, & Memorial Observance
6:00 – 8:00     Cocktails, Silent Auction, & Dinner with Entertainment