The United Leukodystrophy Foundation has many fundraisers throughout the country each year. If you are interested in planning a ULF fundraiser in your area, please contact us at or 800-728-5483.


As the 2016 Miss Dallas, Brittany Tew is hosting “Miss Dallas 5K Benefiting the ULF” on Saturday, June 4th at Bachman Lake Park in Dallas.

Brittany is a talented, ambitious young woman. She is about to graduate from Baylor University with a 4.0 GPA, majoring in biology. At the age of 21, she has already authored 3 books.

Brittany tragically lost two young sisters to leukodystrophy and is dedicating her future to the practice of pediatric neurology after her program at Baylor College of Medicine.



Some recent ULF fundraisers:

In Omaha, Nebraska on February 27th:  Sinnott’s 2016 Winterfest Volleyball Tournament

In Middletown, Ohio on October 30th:  “Night of Enchantment” — Flyer For Dance

In Dayton, Ohio on October 3rd:  “A Walk in the Park for Daniel” — Details

In Lincoln, Nebraska on September 21st:  Click here for more information.