The United Leukodystrophy Foundation has many fundraisers every year. Click to see more information on the events.

If you would be interested in planning an ULF fundraiser, please contact us at


ULF 2012 Annual Benefit Drawing Winners:

E&M Monroe from Ashland, Wisconsin won the one week stay at Christmas Mountain Village in the Wisconsin Dells.

T Henderson from Moss Point, Mississippi won the one week stay at Orange Lake Resort in Florida.

M&D Massey from Jacksonville Beach, Florida won the hand made quilt.

J Roth from Jefferson, Louisiana sold the most tickes and won the conference registration for two.




United Leukodystrophy Foundation and Pole Position Raceway are teaming up to host the 3RD Annual Racers Against Leukodystrophy Charity Race (RAL III).

Leukodystrophy is a genetic disorder that affects the brain by disrupting the myelin sheath that insulates nerves.  Most leukodystrophies are seen in children, and most are devastating fatal diseases.  Currently, there is NO cure.  Please come out and Help find a Cure for leukodystrophy!

Pole Position Raceway, one of the world’s premier indoor karting tracks, is located minutes from NYC.  (99 Caven Point Road, Jersey City, NJ 07305 / 201-333-7223 /

The racing format will be Grand Prix; 2 Qualifiers and 1 Main event.  Each participant will race total of 3 times.  Trophy and Prizes will be given away to the Winners.  BBQ’d lunch and drinks will be provided to all participants, and their family & friends.  (Sponsored by TD Bank, NY Finance Association, AZP Installs, Coby Electronics, and RAL Volunteers).

The event is open to the public.  However, participants MUST PRE-REGISTER.  To register today, contact Jones Kim @ 718 930-3293 /  The entry fee is $75, of which $22.50 will be donated to United Leukodystrophy Foundation.

Please tell all your family and friends to come out and enjoy this exciting event while supporting a great cause.

For Pictures and Video from RAL II, click on the links below.

On behalf of the RAL Volunteer Committee,
Jones Kim 











May 3, 2008 2nd Annual Charity Ride, Omaha, NE

Mitchell & Matthew Sundstrom’s 1st Annual Bike Run & Jam Session

August 25, 2007 – Charity Ride, Omaha, NE

2007 Annual Benefit Drawing

First Annual Dai Anne Meade Memorial Run

Wisconsin Triathlon – Amy Taylor-Haas

Angel Baseball Players Fundraiser

Pi Lambda Phi Fraternity

Friends of Michael Alm

Eaglecrest High School

The Timmy and Brian Crane Foundation

Andrew J. Floyd Memorial Golf Outing/Jam