News

Michelle Fingeroot

It is with saddened hearts that we share the news that our dear friend and ULF Board Member Michelle Fingeroot passed away on June 16th after a long and brave battle against breast cancer. Our condolences go out to our Board Member Alan Fingeroot and his family. Michelle will be ...read more

New MSAB Members Announced

The United Leukodystrophy Foundation is pleased to announce the addition of four new members to its Medical and Scientific Advisory Board. Their involvement will expand the reach of the ULF, benefit research, and assist patient families: -  Genevieve Bernard, M.D., FRCPC with McGill University -  Joshua Bonkowsky, M.D., Ph.D. with University of ...read more

2017 ULF Grant Cycle Now Open

The United Leukodystrophy Foundation is soliciting grant applications to support research in the leukodystrophies. Applications involving any of the leukodystrophies with budgets up to $30,000 (plus up to 10% indirect costs) will be accepted from June 1 through October 2, 2017. The ULF Medical and Scientific Advisory Board will review applications ...read more

Promising New Drug

An exciting new drug has been developed by Northwestern University scientists and approved by the FDA. Although the focus is cancer, this article states that “the new drug is able to cross the challenging blood-brain barrier” and “can be applied to other types of neurological diseases.” https://news.northwestern.edu/stories/2017/may/spherical-nucleic-acid-drug-human-brain-cancer-glioblastoma/  

Conference Registration is Open!

Registration for the 2017 ULF Annual Conference is now open. For conference details and the registration form, please go to the Conference button at the top of this page.

ULF Launches New Web Site

On April 5th, the United Leukodystrophy Foundation launched its new web site, updating its look and content.

ULF 2016 Research Grant Awardees

The ULF Scientific Review Committee reviewed the many, high-quality research grant applications that were submitted from around the world for ULF funding. We received 3 times as many proposals this round than last, and we appreciate all of the proposal submissions from devoted scientists. The United Leukodystrophy Foundation congratulates these gifted ...read more

2016 Benefit Drawing Winners

THANK YOU for participating in this year’s Benefit Drawing to raise money for leukodystrophy research. The drawing was held at the ULF office on Friday, September 30th. We congratulate these winners! Cheryl Serra of Missouri Betty Armbrust of Illinois Julie Malinowski of Michigan Kim Chaney of Illinois Phyllis Melick of Indiana Deb Bernshausen of Illinois sold 548 ...read more

Research Grant Applications Now Being Solicited

The United Leukodystrophy Foundation is soliciting grant applications to support research in the leukodystrophies. Applications involving any of the leukodystrophies with budgets up to $30,000 (plus up to 10% indirect costs) will be accepted through November 14, 2016. The ULF Medical and Scientific Advisory Board will review applications for scientific merit, ...read more

Dr. Matalon Wins ULF Service Award

Congratulations to Dr. Reuben Matalon with the University of Texas Medical Branch for having been honored with the 2016 ULF Service Award, which was presented to him at the ULF Conference on July 28th. The inscription reads: "The United Leukodystrophy Foundation honors Dr. Reuben Matalon for more than 30 years ...read more