News

In Memorial or Honorarium – April 2018

The ULF received donations in memorial or honorarium for the following during the month of April 2018. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF  Asher Fleming-Bloxom: Christine Fleming-Bloxom  Nana Gumbs: Thomas Blandford, Jr. Joshua Ryan Haskins: William and Carol Haskins Daniel ...read more

In Memorial or Honorarium – March 2018

The ULF received donations in memorial or honorarium for the following during the month of March 2018. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF  Linda Fleming: Carlos Diaz George Frame: Ray and Christine Moddrell Clancy Groel: Robert and Lynn Austin Connor ...read more

In Memorial or Honorarium – February 2018

The ULF received donations in memorial or honorarium for the following during the month of February 2018. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Carter Bowman: Katie Bowman, Ken Monahan Zane Dial: Martha Conlon Dori Greene: Andrew and Carol ...read more

In Memorial or Honorarium – January 2018

The ULF received donations in memorial or honorarium for the following during the month of January 2018. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF MaryAnn Backenson: Bryon and Kathleen Backenson Asher Fleming-Bloxom: Keith Yale Ben Conley: Mary Jo ...read more

Obituaries in 2018

It is with our deepest condolences that we recognize members of our ULF family that have passed in 2018. Best, Thomas Tom, age 50, proceeded in death by his twin brother Tim in 2008. Both who had PMD leukodystrophy, were adopted at age 6 weeks by mother Sharon Spears and her former ...read more

New! Leukodystrophy Awareness T-Shirt Fundraisers

Spread the word about Leukodystrophy in your community AND support medical research with the purchase of our newest t-shirt design. Multiple colors and sizes available! All proceeds will support vital medical research! By partnering with Bonfire, we are able to fundraise as well as have the printing and distribution of the ...read more

Obituaries in 2016

It is with our deepest condolences that we recognize members of our ULF family that have passed in 2016. Adler, Marilyn Alm, Stanley Lester Boswell, Elizabeth (Betty) Carpenter Brenner, Michael H. Brown, George W., Jr. Carusone, Vincenzo Clark, Liam David Conroy, Geoffrey Leland Cooper, Deborah Ann Gillette, Wyatt Hagan, David Weldon Haber, Jay Howard Hanuscin, Agnes Hrusovsky Jaeger, Stuart Kieffer, Nora St. Marian Goretti Lebowitz, Marvin Lipe, ...read more

Obituaries in 2017

It is with our deepest condolences that we recognize members of our ULF family that have passed in 2017. Bloxom, Thomas Duane Borodychuk, Olivia Kay Bostock, Mark Cooper, Kelly Joyce Cotsipoulos, Chris Dean, Kolton Kyle Devers, Tyler Michael Caine Dorn, Joan Edwin, David Engbers, Gabriel Jordan Ewen, Barbara M. Fleming Family Harris, Rick Lee LaPlace, Janet Leblang, David Maloney, William "Bill" Michael Meyer, Andrew Moore, Latavia Michelle Moore Moore, ...read more