News

In Memorial or Honorarium – August 2018

The ULF received donations in memorial or honorarium for the following during the month of August 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF  Gregory Brown: Michael Adamo, Theresa Hollnsteiner, Katelyn Tierney Thomas Cunningham: Sallie Griffiths Arwyn Hamilton: Debbie Stevens Noah Hinds: John and ...read more

2018 Benefit Drawing

The time has come once again for the United Leukodystrophy Foundation’s Annual Benefit Drawing fundraiser! Thanks to the involvement of our members, friends, and donors like you, we are able to continue to award vital funding to researchers, who strive to find new treatments for the leukodystrophies and to provide ...read more

In Memorial or Honorarium – July 2018

The ULF received donations in memorial or honorarium for the following during the month of July 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. IN HONOR OF  David Anderson: L3 Aerospace Systems Amari Ball: Ken and Diane Mobeck Louis Goldman ...read more

Leukodystrophy and genome sequencing: for genetically undiagnosed patients for the 100,000 genomes project

Henry Houlden, Professor of Neurology and Neurogenetics at the UCL Institute of Neurology and The National Hospital for Neurology and Neurosurgery, Queen Square, London is looking to collect blood samples via mail or at their London hospital. Learn more here: http://bit.ly/2w5RtSe If you are interested in participating, please contact: Henry Houlden Professor of Neurology and Neurogenetics, 7th floor ...read more

Henry Crawley, PMLD

by David Crawley My son Henry is our first born, next to his beautiful and helpful 4 year old sister Rosemary. Henry is 5 years old (about to be 6) and he's a happy, thoughtful, wonderful, kind, and loving little boy. He is very curious, imaginative, and funny. Every day he ...read more

In Memorial or Honorarium – June 2018

The ULF received donations in memorial or honorarium for the following during the month of June 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. IN HONOR OF  Sam Buck: Mr. and Mrs. Randall Horton Marc D’Amico: Mr. and Mrs. ...read more

In Memorial or Honorarium – May 2018

The ULF received donations in memorial or honorarium for the following during the month of May 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. IN HONOR OF  W. Boone: Thomas Blandford, Jr. Sophie Clarke: Julia Bolton Michael Collins: Catherine Collins Sue Gasper: Susan ...read more

In Memorial or Honorarium – April 2018

The ULF received donations in memorial or honorarium for the following during the month of April 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF  Asher Fleming-Bloxom: Christine Fleming-Bloxom  Nana Gumbs: Thomas Blandford, Jr. Joshua Ryan Haskins: William and Carol Haskins Daniel ...read more

In Memorial or Honorarium – March 2018

The ULF received donations in memorial or honorarium for the following during the month of March 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF  Linda Fleming: Carlos Diaz George Frame: Ray and Christine Moddrell Clancy Groel: Robert and Lynn Austin Connor ...read more

In Memorial or Honorarium – February 2018

The ULF received donations in memorial or honorarium for the following during the month of February 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Carter Bowman: Katie Bowman, Ken Monahan Zane Dial: Martha Conlon Dori Greene: Andrew and Carol ...read more