News

Save the Dates!

Save the dates for the 2016 ULF Annual Conference and plan to join us! Scientific Symposium — July 28 Family Conference — July 28-30 Embassy Suites Downtown/Old Market in Omaha, Nebraska — Room rate of $129 A fabulous wrap-up celebration will be held at Omaha’s Henry Doorly Zoo & Aquarium. Enjoy the antics of penguins and the thrill of cocktails ...read more

William Kintner, D.Min., Th.M., LMFT

It is with great sadness that we share the news of the passing of Dr. William Kintner on Sunday January 3, 2016. Dr. Kintner was involved with the ULF since the early 1980’s. He served as the Board Vice President from 1986 to 2012. Bill was elected President of the ...read more

Alexander Disease

We thank Dr. Albee Messing with the Waisman Center at the University of Wisconsin-Madison for sharing two webinars and a podcast with updates on research on Alexander Disease. We hope that you will find this information useful: http://www.waisman.wisc.edu/alexander-disease/webinars.html

2015 Benefit Drawing Winners!

Congratulations to Our Benefit Drawing Winners! A big thank you goes out to all of you who entered the ULF's Annual Benefit Drawing! We received thousands of entries. The winners of our 2015 Benefit and their prizes are:  Maria Guerrero in MA - Handmade quilt by Anita Lewis  John Kelley in PA -- Lenova ...read more

Well-deserved Award for Ann Moser

At its conference in Boston in October, ALD Connect announced the new “Ann B. Moser ALD Community Award”, an honor which recognizes unusually impactful contributions to the ALD community at-large or major milestones in the history of the disease. This award was established in recognition of Mrs. Moser’s dedication to leukodystrophy ...read more

Chamber Ribbon Cutting

ULF is proud to be a new member of the DeKalb, IL Chamber of Commerce. This was our recent ribbon cutting event.

91 Years Ago

October 4 -- Ninety-one years ago today, an extraordinary man was born. We celebrate Dr. Hugo Moser for his pioneering research. At the time of his death in 2007, Dr. Moser was the Director of the Neurogenetics Research Center at the Kennedy Krieger Institute and was a Professor of Neurology and ...read more

ULF Introduces New Executive Director – Bobbi Burgstone

The United Leukodystrophy Foundation is proud to welcome Bobbi Burgstone as its new Executive Director. For 19 years, Bobbi has served in senior management roles for non-profit organizations, including the American Association of Neurological Surgeons and the National Multiple Sclerosis Society. She is active in professional and community organizations. In addition ...read more

Fabulous Halloween Costumes for Those in Wheelchairs

Enjoy Halloween festivities in these fun costumes designed for those in wheelchairs:   http://www.goodnewsnetwork.org/dads-awesome-nonprofit-builds-wheelchair-based-halloween-costumes-for-kids/#.Vfse1IeFh0x.twitter   http://www.huffingtonpost.com/2012/10/01/best-halloween-costume-wheelchair-special-needs-buster-ice-cream-truck_n_1928714.html   https://www.facebook.com/media/set/?set=a.485046330860.291393.9972045860&type=3   Have a great time!

“A Walk in the Park for Daniel”

Going to be in Dayton, Ohio on October 3rd?  Join in the fun at "A Walk in the Park for Daniel."  All proceeds benefit the United Leukodystrophy Foundation. Here are the details. Thank you!