Newsletters

View past newsletters from the United Leukodystrophy Foundation! We hope that you find this information useful in your leukodystrophy journey.


Would you like to receive a printed copy of the newsletter? You’re in luck! The ULF still offers printed copies of the newsletters which will be mailed to your home as soon as they are published. We ask for a $25 per year subscription fee – this covers the costs that the ULF incurs to print and mail the four newsletters per year. You can also sign up for a one year subscription for $25, a five year subscription for $100, or a lifetime subscription for $250! The lifetime subscription will stay in effect until you tell us you would like to stop receiving the newsletter. The subscription is transferrable to a new address if you move, but not transferrable to a different person.