Recently Diagnosed

Being diagnosed with a Leukodystrophy can be a very scary thing.  This website is filled with resources, support communities, informational videos, and even an equipment exchange program.  Our motto is “You are not alone” and this website is intended to serve as a means for you to learn, cope, and find the support and resources you need.


We invite you to become a member of the ULF to access all the resources available.