Winter 2013 News

From the ULF President-

It has been a heartwarming year for the ULF. Our summer meetings in DeKalb, Illinois this past July marked our thirty-first year of service and support to those stricken with leukodystrophy diseases. A historical announcement was made during our annual scientific meeting. For the very first time, clinical trials are being conducted which offer cures for ALD, MLD and Canavan leukodystrophies. I am overjoyed! Please see detailed information included in Dr. William Rizzo’s scientific symposium summary in this issue of ULF News.

The ULF first began in Baltimore, MD under the leadership of Dr. Hugo Moser at the Kennedy Krieger Institute.  Joining him as founders were Greg and Carolyn Huffer from Indianapolis. The first ULF meetings were held in Baltimore. This coming summer, the ULF will once again return to Baltimore July 31 – August 3, for our annual meetings. Please mark your calendars and make plans now to attend. We will be housed at the new Inner Harbor Embassy Suites Hotel in downtown Baltimore near both Kennedy Krieger and Johns Hopkins. Baltimore Washington International Airport is a close twenty miles access to the conference site. Last year’s attendance was more than double that of previous years. We are expecting a great turnout in Baltimore. Please be part of it.

Now that the holiday season is once again upon us, I encourage you to remember and count the ULF among your many blessings. We depend solely upon the generous hearts and good giving of our membership to keep the ULF going. You have helped in so many ways as we have pushed science forward to address white matter concerns. Our hopes are now beginning to be actualized. You can help bring more cures forward. Thank you for your support, love, and generosity. We are here for you.

Abundant blessings and good cheer to each of you,

William Kintner, D.Min., Th.M.

ULF President