Learn all the benefits of becoming a member of our community
There are several ways to donate to the cause. Learn how a give today.
Get connected with other patients, families, friends, and caregivers for support.
You can give to the foundation by shopping our merchandise.
Save the Date and Save Money by making your travel arrangements early for our 2015 Annual Scientific Meeting and Family conference which will be held at the Embassy Suites Downtown Old Market in Omaha, Nebraska.
Please plan your travel to arrive on Tuesday, July 14th and depart on Sunday, July 19th. The meeting will kick off on Wednesday morning, July 15th and run through Saturday, July 18th.
Agendas and registration details will be posted when available.
The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment and prevention.
View our most recent newsletter by clicking the following link: 2014 Spring Newsletter