Registration is now open for our annual conference, register today to get the early bird rate:

Professionals/Organizations              Families/Individuals

View the agendas here: Provisional Scientific Agenda  Provisional Family Agenda

When you receive your email registration confirmation there will be a link to the Embassy Suites so you can make your room reservation at our discounted rate.

Our Mission:

The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment and prevention.

View our most recent newsletter by clicking the following link: Spring-Summer Newsletter

When you shop @AmazonSmile, Amazon will make a donation to The United Leukodystrophy Foundation Inc.

Support the ULF when you order flowers!

Support the ULF when you order flowers!