Learn all the benefits of becoming a member of our community
There are several ways to donate to the cause. Learn how a give today.
Get connected with other patients, families, friends, and caregivers for support.
You can give to the foundation by shopping our merchandise.
Registration is now open for our annual conference, register today to get the early bird rate:
When you receive your email registration confirmation there will be a link to the Embassy Suites so you can make your room reservation at our discounted rate.
The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment and prevention.
View our most recent newsletter by clicking the following link: Spring-Summer Newsletter