Research Grant Applications Now Being Solicited

The United Leukodystrophy Foundation is soliciting grant applications to support research in the leukodystrophies. Applications involving any of the leukodystrophies with budgets up to $30,000 (plus up to 10% indirect costs) will be accepted through November 14, 2016.

The ULF Medical and Scientific Advisory Board will review applications for scientific merit, feasibility, and likelihood to advance the field. Funding will be awarded by December 31, 2016 and extend for one year.

Researchers must use the ULF Research Grant Application Template and submit applications electronically. Funded investigators will be invited to present their research at a future ULF Scientific Meeting.


Benefit Drawing

THANK YOU for participating in this year’s Benefit Drawing to raise money for leukodystrophy research.

The drawing was held at the ULF office on Friday, September 30th. We congratulate these winners!

Cheryl Serra of Missouri

Betty Armbrust of Illinois

Julie Malinowski of Michigan

Kim Chaney of Illinois

Phyllis Melick of Indiana

Deb Bernshausen of Illinois sold 548 tickets!!  She is the winner of the incentive prize, which is registration and hotel for 2 for our 2017 ULF Family Conference in Minneapolis next July.


Our Mission

The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment, and prevention.


About Us

The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies.

Leukodystrophies make up a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted.

The ULF is supported solely by individual donations and corporate support.


Support life-saving science — Please donate today!

Scientific advancements will improve the lives of affected families!

Researchers are making critical, groundbreaking discoveries every year. But they require funding to keep going.

The United Leukodystrophy Foundation has increased its goal for research funding in 2016. We’re supporting innovative advances for new therapies to finally put an end to the debilitating leukodystrophies.

Support the science to find a cure for Leukodystrophy.

Please help us make a difference. Be a part of the science that will transform the lives of those suffering with the disease.

Every gift counts. Large or small, every gift matters.

Please make your tax-deductible gift today!


     United Leukodystrophy Foundation

     224 N. Second Street, Suite 2

     DeKalb, IL  60115