Joyce Changle


Joyce Changle
Carnegie, Pennsylvania

Joyce is a retired nurse of 37 years.

She became involved with the ULF in 2009 when her grandson, Dylan, was diagnosed with Krabbe Leukodystrophy. She was appointed to the Board of Directors in 2012.

Joyce serves on the Board to educate the general public about the leukodystrophies while supporting patients, caregivers, and family members. She works with other patient advocacy organizations by supporting fundraising and research, and ultimately wants to find a cure for all leukodystrophies.

She enjoys spending time with her husband, who recently retired, and her beautiful grandchildren. Seasonally, she attends festivals where she sells cotton candy and popcorn to fundraise for leukodystrophy research and spread awareness.

Scroll to Top