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2022 ULF Family Conference
June 24 - June 25
2022 Family Conference
Join us at the Eaglewood Resort and Spa on Friday and Saturday, June 24th and 25th!
It’s official – the ULF Family Conference is back in-person! We are thrilled to be hosting at the Eaglewood Resort and Spa again this year, and we cannot wait to see you! Registration is now open! We will post updates on this page as we continue to finalize information about this year’s event, so please check back regularly!
The ULF Family Conference is an annual event where affected families can access the world’s top leukodystrophy physicians and researchers – outside of the restrictions of insurance and the hospital setting. Held over two days, the Conference aims to provide the latest scientific information to keep families informed on advances in the field but also guide families on topics that will improve their overall quality of life while living with a leukodystrophy. The Conference is an invaluable experience geared toward the whole family: Affected individuals, parents and caregivers, spouses, siblings, extended family, friends, and anyone else in their support network.
For more information visit https://ulf.org/news/family-conference/