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ALSP Community Webinar

January 26 @ 12:30 pm - 1:30 pm


Plan to join the free ALSP Community Webinar on January 26!


Dear community members,


On January 26th, 2023, from 12:30 -1:30 PM EST United Leukodystrophy Foundation will join with other leaders in patient advocacy for a very special ALSP update webinar update that is being sponsored by Vigil Neuroscience, a clinical-stage biotechnology company working to develop a new treatment for ALSP. The program will include:


  1. An update from Vigil Neuroscience including an overview of their Natural History Study and Phase 2 Clinical Trial
  2. An update on ALSP from Dr. Jennifer Orthmann-Murphy, MD, PhD, Assistant Professor of Neurology a University of Pennsylvania Medicine. Dr. Orthmann-Murphy is a leading expert in ALSP and white matter disorders.
  3. A review of key objectives and intro to leaders from leukodystrophy focused Patient Advocacy Organizations
  4. A question-and-answer session with the panel speakers.  Participants/registrants are invited to submit questions in advance of the program to  patients@vigilneuro.com.


We hope you will plan to join us for this special webinar event that is specifically designed for members of the ALSP community. This will be a great opportunity to learn more about research that could lead to a new treatment,  build stronger connections in the ALSP community and help us all stay updated on available support and resources.  We know there will be a great deal of interest and Vigil will be recording the webinar so it is accessible to others in the future.


To RSVP for the webinar, please click: https://vigilneuro.zoom.us/webinar/register/8116722453314/WN_GcF5LJBRQ7y90H0pHadB0Q



January 26
12:30 pm - 1:30 pm
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