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Siblings of Leukodystrophy

December 16, 2021

Alex and Liam Chapleau have a brother, Aiden, who is affected by MLC. The goal of this webinar is to explore how siblings, and the family unit as a whole, are impacted by the challenges faced by a leukodystrophy diagnosis. This session is not just for siblings; all are welcome to attend and participate. The Chapleau Family’s experience is only one of many – but they hope to open the conversation up on a sometimes tricky topic so that other families know that they are not alone in this unique aspect of living with a person with a rare disease.

THURSDAY, DECEMBER 16, 2021 AT 7 PM Central Time

This session will be recorded and posted to the ULF’s YouTube Channel the next day. https://www.youtube.com/c/ULFOffice/videos

Details

Date:
December 16, 2021
Event Category:
https://bit.ly/3rO2ea8

Organizer

United Leukodystrophy Foundation
Email:
office@ulf.org
View Organizer Website

Venue

Virtual
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