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Two-Part Clinical Trials 101 Live Webinar Series

October 20 @ 7:00 pm

The ULF and ICON presents a Live Webinar Series for Leukodystrophy Families


Clinical Trials are crucial to the advancement of disease research in so many ways. Participating in a trial can be a tricky decision for families to make, especially if the affected person is a child, and the process isn’t always smooth sailing.


The ULF presents this two-part series in collaboration with ICON, a global provider of consulting, and outsourced development and commercialization services to pharmaceutical, biotechnology, medical device and government and public health organizations.

In the second session, ICON presents a general education session on what Clinical Trials are and address some frequently asked questions. A Family Panel will also be present to provide their perspective on what it was like participating in trials from the patient’s point of view.

Registration is required to attend the live sessions. You will receive  zoom links the morning of the webinar. Recordings of the sessions will be available for viewing on YouTube at a later date. We hope you will join us live and bring your questions for our panelists!

Register Here


October 20
7:00 pm
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United Leukodystrophy Foundation
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