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Two-Part Clinical Trials 101 Live Webinar Series

October 13 @ 7:00 pm

The ULF and ICON presents a Live Webinar Series for Leukodystrophy Families

Clinical Trials are crucial to the advancement of disease research in so many ways. Participating in a trial can be a tricky decision for families to make, especially if the affected person is a child, and the process isn’t always smooth sailing.

The ULF presents this two-part series in collaboration with ICON, a global provider of consulting, and outsourced development and commercialization services to pharmaceutical, biotechnology, medical device and government and public health organizations.

In the first session, industry leaders with current clinical trials will present from their perspective on the trial process. We welcome five pharmaceutical companies to the panel – Viking Therapeutics, Passage Bio, SwanBio, Vigil Neuro, and Poxel – to share their insights on what clinical trials are like from behind the scenes and “outside of the laboratory.”

Registration is required to attend the live sessions. You may register for one session or both – you will receive both zoom links the morning of the webinars. Recordings of the sessions will be available for viewing on YouTube at a later date. We hope you will join us live and bring your questions for our panelists!

Register here


October 13
7:00 pm
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United Leukodystrophy Foundation
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