Brain pops are available, order yours today! You could even hold on to them and hand them out on Halloween as a tasty awareness treat! ORDER BRAIN POPS Looking just to raise funds for the mission? Join our Team Fundraising goal! TEAM FUNDRAISING
Each year Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners and allies. Due to the COVID-19 global pandemic, and the threat this poses to the health and safety of our rare disease community, we are replacing this highly-anticipated event with the Global Genes LIVE! …
Global Genes LIVE! A RARE Patient Advocacy (un)Summit Read More »
Once a month RDLA convenes via Zoom webinar to discuss legislation and developments that affect the rare disease community. https://everylifefoundation.salsalabs.org/SeptemberRDLAWebinar2021/index.html?eType=EmailBlastContent&eId=d72206af-3020-46b2-930d-338b045c683d
Genetic Alliance presents - Lessons from the field - In this webinar series, advocacy leaders and other experts share their experiences. This includes successes and failures, challenges and opportunities, and simply celebrating the good work that is happening all around us - in our field. https://us02web.zoom.us/meeting/register/tZcqf-CvrDwjE9I6kql3WX4wfcknSUyZNaDu
