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Leukodystrophy Awareness Month

Brain pops are available, order yours today! You could even hold on to them and hand them out on Halloween as a tasty awareness treat! ORDER BRAIN POPS Looking just to raise funds for the mission? Join our Team Fundraising goal! TEAM FUNDRAISING

Global Genes LIVE! A RARE Patient Advocacy (un)Summit

Each year Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners and allies. Due to the COVID-19 global pandemic, and the threat this poses to the health and safety of our rare disease community, we are replacing this highly-anticipated event with the Global Genes LIVE! …

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