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Leukodystrophy Awareness Month

Brain pops are available, order yours today! You could even hold on to them and hand them out on Halloween as a tasty awareness treat! ORDER BRAIN POPS Looking just to raise funds for the mission? Join our Team Fundraising goal! TEAM FUNDRAISING

Global Genes LIVE! A RARE Patient Advocacy (un)Summit

Join us for a variety of interactive and educational events, meet-ups, workshops and networking opportunities. Here you’ll have the opportunity to connect and engage with others in the rare disease community, while experiencing the sense of community and belonging we’ve missed so much. Gain insights about the latest in rare disease innovations, best practices for …

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