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X-WR-CALNAME:United Leukodystrophy Foundation
X-ORIGINAL-URL:https://ulf.org
X-WR-CALDESC:Events for United Leukodystrophy Foundation
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DTSTART;TZID=America/Chicago:20260412T120000
DTEND;TZID=America/Chicago:20260412T130000
DTSTAMP:20260405T100505
CREATED:20260219T215233Z
LAST-MODIFIED:20260227T214314Z
UID:15555-1775995200-1775998800@ulf.org
SUMMARY:Sunday 4/12/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, April 12\, 2026 @ 1:00 PM ET / 12:00 PM CT
URL:https://ulf.org/event/sunday-4-12-26-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-4.12.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260518T200000
DTEND;TZID=America/New_York:20260518T210000
DTSTAMP:20260405T100505
CREATED:20260219T215642Z
LAST-MODIFIED:20260227T214354Z
UID:15559-1779134400-1779138000@ulf.org
SUMMARY:Monday 5/18/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, May 18\, 2026 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/monday-5-18-26-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-5.18.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260720T200000
DTEND;TZID=America/New_York:20260720T210000
DTSTAMP:20260405T100505
CREATED:20260219T215900Z
LAST-MODIFIED:20260227T214426Z
UID:15562-1784577600-1784581200@ulf.org
SUMMARY:Monday  7/20/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, July 20\, 2026 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/monday-7-20-26-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-7.20.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260809T130000
DTEND;TZID=America/New_York:20260809T140000
DTSTAMP:20260405T100505
CREATED:20260219T220336Z
LAST-MODIFIED:20260227T214459Z
UID:15566-1786280400-1786284000@ulf.org
SUMMARY:Sunday 8/9/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details: \n\n\n\nSunday\, August 9\, 2026 @ 1:00 PM ET / 12:00 PM CT
URL:https://ulf.org/event/sunday-8-9-26-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-8.9.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260921T200000
DTEND;TZID=America/New_York:20260921T210000
DTSTAMP:20260405T100505
CREATED:20260219T220641Z
LAST-MODIFIED:20260227T214531Z
UID:15569-1790020800-1790024400@ulf.org
SUMMARY:Monday 9/21/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, September 21\, 2026 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/monday-9-21-26-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-12.21.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261011T130000
DTEND;TZID=America/New_York:20261011T140000
DTSTAMP:20260405T100505
CREATED:20260219T220904Z
LAST-MODIFIED:20260227T214558Z
UID:15572-1791723600-1791727200@ulf.org
SUMMARY:Sunday 10/11/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, October 11\, 2026 @ 1:00 PM ET / 12:00 PM CT
URL:https://ulf.org/event/sunday-10-11-26-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-10.11.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261116T200000
DTEND;TZID=America/New_York:20261116T210000
DTSTAMP:20260405T100505
CREATED:20260219T221103Z
LAST-MODIFIED:20260227T214630Z
UID:15575-1794859200-1794862800@ulf.org
SUMMARY:Monday 11/16/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, November 16\, 2026 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/monday-11-16-26-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-11.16.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261213T130000
DTEND;TZID=America/New_York:20261213T140000
DTSTAMP:20260405T100505
CREATED:20260219T221334Z
LAST-MODIFIED:20260227T214700Z
UID:15576-1797166800-1797170400@ulf.org
SUMMARY:Sunday 12/13/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. Let this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, December 13\, 2026 @ 1:00 PM ET / 12:00 PM CT
URL:https://ulf.org/event/sunday-12-13-26-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-12.13.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270118T200000
DTEND;TZID=America/New_York:20270118T210000
DTSTAMP:20260405T100505
CREATED:20260219T221543Z
LAST-MODIFIED:20260227T214730Z
UID:15579-1800302400-1800306000@ulf.org
SUMMARY:Monday 1/18/27 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, January 18\, 2027 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/monday-1-18-27-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-1.18.27.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270214T130000
DTEND;TZID=America/New_York:20270214T140000
DTSTAMP:20260405T100505
CREATED:20260219T221737Z
LAST-MODIFIED:20260227T214758Z
UID:15582-1802610000-1802613600@ulf.org
SUMMARY:Sunday 2/14/27 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, February 14\, 2027 @ 1:00 PM ET / 12:00 PM CT
URL:https://ulf.org/event/sunday-2-14-27-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-2.14.27.png
END:VEVENT
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