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PRODID:-//United Leukodystrophy Foundation - ECPv6.15.11//NONSGML v1.0//EN
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X-WR-CALNAME:United Leukodystrophy Foundation
X-ORIGINAL-URL:https://ulf.org
X-WR-CALDESC:Events for United Leukodystrophy Foundation
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BEGIN:VTIMEZONE
TZID:UTC
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TZOFFSETFROM:+0000
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DTSTART:20230101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250413T120000
DTEND;TZID=UTC:20250413T130000
DTSTAMP:20260406T025106
CREATED:20250130T202932Z
LAST-MODIFIED:20250130T202952Z
UID:13360-1744545600-1744549200@ulf.org
SUMMARY:Caregiver Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Memeber Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, April 13th\, 2025 @ 12:00 PM CST / 1:00 PM ESTRegister Here
URL:https://ulf.org/event/caregiver-online-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250317T190000
DTEND;TZID=UTC:20250317T200000
DTSTAMP:20260406T025106
CREATED:20250130T202803Z
LAST-MODIFIED:20250314T145054Z
UID:13369-1742238000-1742241600@ulf.org
SUMMARY:Caregiver Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassador Margaret Halter\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, March 17th @ 8pm ET / 7pm CTRegister Here
URL:https://ulf.org/event/caregiver-online-support-group-13/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240908T130000
DTEND;TZID=UTC:20240908T140000
DTSTAMP:20260406T025106
CREATED:20240815T211743Z
LAST-MODIFIED:20240815T211743Z
UID:11175-1725800400-1725804000@ulf.org
SUMMARY:WEBINAR: Meet The Ambassadors
DESCRIPTION:At ULF’s June conference\, we announced our Ambassador Program. Ambassadors are people who have lived experience with leukodystrophy\, and are therefore\, the best candidates to understand and help address your needs. You may recall the first time you heard the word leukodystrophy and how you felt. Many feel lost\, alone\, and uncertain as to where to turn. \nThe Ambassador Program formalizes and expands the support ULF has been providing to the community for so many years. Through regional and local Ambassadors\, we guide patients and families through their journey at their own pace. This is done through offering education\, tools and resources specifically designed to help those who are affected by leukodystrophy\, so they are better informed and the sense of feeling so alone is reduced. You will meet our Ambassadors and learn about their backgrounds and commitment to supporting other affected patients and families. \nRegister here  
URL:https://ulf.org/event/webinar-meet-the-ambassadors/
LOCATION:Virtual
CATEGORIES:Event,Webinar
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/08/Meet-the-Ambassadors-Webinar-1920-x-1080-px1-1.png
ORGANIZER;CN="United Leukodystrophy Foundation":MAILTO:office@ulf.org
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