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X-WR-CALNAME:United Leukodystrophy Foundation
X-ORIGINAL-URL:https://ulf.org
X-WR-CALDESC:Events for United Leukodystrophy Foundation
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TZOFFSETFROM:-0500
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TZOFFSETFROM:-0600
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DTSTART;TZID=America/New_York:20260316T200000
DTEND;TZID=America/New_York:20260316T210000
DTSTAMP:20260406T025813
CREATED:20260217T222028Z
LAST-MODIFIED:20260227T214156Z
UID:15544-1773691200-1773694800@ulf.org
SUMMARY:Monday 3/16/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, March 16\, 2026 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-3.16.26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260208T130000
DTEND;TZID=UTC:20260208T140000
DTSTAMP:20260406T025813
CREATED:20250805T174135Z
LAST-MODIFIED:20250912T201957Z
UID:14339-1770555600-1770559200@ulf.org
SUMMARY:Caregiver Support Group 2/8/26
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, February 8\, 2026 @ 1:00 PM ET / 12:00 PM CT
URL:https://ulf.org/event/caregiver-support-group-2-8-26/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/08/2.8.26-Caregiver-Online-Support-Group-ULF.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260119T200000
DTEND;TZID=UTC:20260119T210000
DTSTAMP:20260406T025813
CREATED:20250805T173905Z
LAST-MODIFIED:20250912T201932Z
UID:14335-1768852800-1768856400@ulf.org
SUMMARY:Caregiver Support Group 1/19/26
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors\, Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Margaret Halter and Roger Locy ULF Ambassadors\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, January 19\, 2026 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/caregiver-support-group-1-19-26/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/08/1.19.26-Caregiver-Online-Support-Group-ULF.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251214T130000
DTEND;TZID=UTC:20251214T140000
DTSTAMP:20260406T025813
CREATED:20250805T173600Z
LAST-MODIFIED:20250912T201545Z
UID:14330-1765717200-1765720800@ulf.org
SUMMARY:Caregiver Support Group 12/14/25
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, December 14th @ 1:00 pm ET / 12:00 pm CT
URL:https://ulf.org/event/caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/08/12.14.25-Caregiver-Online-Support-Group-ULF.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251117T200000
DTEND;TZID=UTC:20251117T210000
DTSTAMP:20260406T025813
CREATED:20250805T173329Z
LAST-MODIFIED:20250912T201854Z
UID:14327-1763409600-1763413200@ulf.org
SUMMARY:Caregiver Support Group 11/17/25
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors\, Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Margaret Halter and Roger Locy ULF Ambassadors\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, November 17\, 2025 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/caregiver-support-group-11-17-25/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/08/11.17.25-Caregiver-Online-Support-Group-ULF.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251012T130000
DTEND;TZID=UTC:20251012T140000
DTSTAMP:20260406T025813
CREATED:20250805T172926Z
LAST-MODIFIED:20250912T201702Z
UID:14323-1760274000-1760277600@ulf.org
SUMMARY:Caregiver Support Goup 10/12/25
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, October 12th @ 1:00 PM ET/ 12:00 PM CT
URL:https://ulf.org/event/caregiver-support-goup-10-12-25/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/08/10.12.25-Caregiver-Online-Support-Group-ULF.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250915T200000
DTEND;TZID=UTC:20250915T210000
DTSTAMP:20260406T025813
CREATED:20250805T153005Z
LAST-MODIFIED:20250912T201832Z
UID:14298-1757966400-1757970000@ulf.org
SUMMARY:Caregivers Support Group 9/15/25
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support.Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect:  \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Margaret Halter and Roger Locy ULF Ambassadors\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, September 15th @ 8:00 PM ET/ 7:00 PM CT
URL:https://ulf.org/event/caregivers-support-group-15/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/08/9.15.25-Caregiver-Online-Support-Group-ULF.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250810T130000
DTEND;TZID=UTC:20250810T140000
DTSTAMP:20260406T025813
CREATED:20250805T171203Z
LAST-MODIFIED:20250805T211333Z
UID:14303-1754830800-1754834400@ulf.org
SUMMARY:Caregivers Support Group 8/10/25
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect:• A safe\, nonjudgmental environment to share your experiences and feelings.• Peer-to-peer support from caregivers who understand your journey.• Guidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise. \n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends.Let this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, August 10\, 2025 @ 1:00 PM ET / 12:00 PM CT
URL:https://ulf.org/event/caregivers-support-group-8-10-25/
CATEGORIES:Event,support group
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250615T120000
DTEND;TZID=UTC:20250615T130000
DTSTAMP:20260406T025813
CREATED:20250130T210144Z
LAST-MODIFIED:20250130T210146Z
UID:13390-1749988800-1749992400@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Memeber Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, June 15th\, 2025 @ 12:00 PM CST / 1:00 PM ESTRegister Here
URL:https://ulf.org/event/caregivers-support-group-14/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250519T200000
DTEND;TZID=UTC:20250519T210000
DTSTAMP:20260406T025813
CREATED:20250130T204128Z
LAST-MODIFIED:20250130T205802Z
UID:13372-1747684800-1747688400@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, May 19th @ 8pm ET / 7pm CTRegister Here
URL:https://ulf.org/event/caregivers-support-group-13/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/1-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250413T120000
DTEND;TZID=UTC:20250413T130000
DTSTAMP:20260406T025813
CREATED:20250130T202932Z
LAST-MODIFIED:20250130T202952Z
UID:13360-1744545600-1744549200@ulf.org
SUMMARY:Caregiver Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Memeber Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, April 13th\, 2025 @ 12:00 PM CST / 1:00 PM ESTRegister Here
URL:https://ulf.org/event/caregiver-online-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250317T190000
DTEND;TZID=UTC:20250317T200000
DTSTAMP:20260406T025813
CREATED:20250130T202803Z
LAST-MODIFIED:20250314T145054Z
UID:13369-1742238000-1742241600@ulf.org
SUMMARY:Caregiver Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassador Margaret Halter\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, March 17th @ 8pm ET / 7pm CTRegister Here
URL:https://ulf.org/event/caregiver-online-support-group-13/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250209T120000
DTEND;TZID=America/Chicago:20250209T130000
DTSTAMP:20260406T025813
CREATED:20250115T203546Z
LAST-MODIFIED:20250130T200656Z
UID:12707-1739102400-1739106000@ulf.org
SUMMARY:Caregiver Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, February 9th\, 2025 @ 12:00 PM CST / 1:00 PM ESTRegister Here
URL:https://ulf.org/event/caregiver-online-support-group-12/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape11.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250120T190000
DTEND;TZID=America/Chicago:20250120T200000
DTSTAMP:20260406T025813
CREATED:20250115T190403Z
LAST-MODIFIED:20250117T173557Z
UID:12669-1737399600-1737403200@ulf.org
SUMMARY:Caregivers Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors Jamie Barlow and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Jamie Barlow and John Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday Jan 20th 8pm ET / 7pm CTRegister Here
URL:https://ulf.org/event/caregivers-online-support-group/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241208T120000
DTEND;TZID=America/Chicago:20241208T130000
DTSTAMP:20260406T025813
CREATED:20240115T204251Z
LAST-MODIFIED:20250117T173727Z
UID:7698-1733659200-1733662800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here
URL:https://ulf.org/event/caregivers-support-group-12/
CATEGORIES:support group
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2024/01/12-December.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241124T130000
DTEND;TZID=America/Chicago:20241124T140000
DTSTAMP:20260406T025813
CREATED:20240115T204133Z
LAST-MODIFIED:20241003T164713Z
UID:7695-1732453200-1732456800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here https://us02web.zoom.us/meeting/register/tZAkcu6tqzojG9QDAaqPyml1YvS8skoO83qg \n 
URL:https://ulf.org/event/caregivers-support-group-11/
CATEGORIES:support group
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2024/01/11-November.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241027T120000
DTEND;TZID=America/Chicago:20241027T130000
DTSTAMP:20260406T025813
CREATED:20240115T204015Z
LAST-MODIFIED:20241003T165159Z
UID:7692-1730030400-1730034000@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here https://us02web.zoom.us/meeting/register/tZUqceCrqz8iH9a-l6zuKZu_4X5AOAsqrF8l#/registration \n  \n 
URL:https://ulf.org/event/caregivers-support-group-10/
CATEGORIES:support group
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2024/01/10-October.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241001T190000
DTEND;TZID=America/Chicago:20241001T200000
DTSTAMP:20260406T025813
CREATED:20240115T203848Z
LAST-MODIFIED:20241001T185940Z
UID:7689-1727809200-1727812800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here \n 
URL:https://ulf.org/event/caregivers-support-group-9/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240825T120000
DTEND;TZID=America/Chicago:20240825T130000
DTSTAMP:20260406T025813
CREATED:20240115T202336Z
LAST-MODIFIED:20240822T212258Z
UID:7686-1724587200-1724590800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here
URL:https://ulf.org/event/caregivers-support-group-8/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape.png
END:VEVENT
END:VCALENDAR