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X-WR-CALNAME:United Leukodystrophy Foundation
X-ORIGINAL-URL:https://ulf.org
X-WR-CALDESC:Events for United Leukodystrophy Foundation
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DTSTART;TZID=UTC:20250413T120000
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CREATED:20250130T202932Z
LAST-MODIFIED:20250130T202952Z
UID:13360-1744545600-1744549200@ulf.org
SUMMARY:Caregiver Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Memeber Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, April 13th\, 2025 @ 12:00 PM CST / 1:00 PM ESTRegister Here
URL:https://ulf.org/event/caregiver-online-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250317T190000
DTEND;TZID=UTC:20250317T200000
DTSTAMP:20260406T044612
CREATED:20250130T202803Z
LAST-MODIFIED:20250314T145054Z
UID:13369-1742238000-1742241600@ulf.org
SUMMARY:Caregiver Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassador Margaret Halter\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, March 17th @ 8pm ET / 7pm CTRegister Here
URL:https://ulf.org/event/caregiver-online-support-group-13/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250209T120000
DTEND;TZID=America/Chicago:20250209T130000
DTSTAMP:20260406T044612
CREATED:20250115T203546Z
LAST-MODIFIED:20250130T200656Z
UID:12707-1739102400-1739106000@ulf.org
SUMMARY:Caregiver Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, February 9th\, 2025 @ 12:00 PM CST / 1:00 PM ESTRegister Here
URL:https://ulf.org/event/caregiver-online-support-group-12/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape11.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250120T190000
DTEND;TZID=America/Chicago:20250120T200000
DTSTAMP:20260406T044612
CREATED:20250115T190403Z
LAST-MODIFIED:20250117T173557Z
UID:12669-1737399600-1737403200@ulf.org
SUMMARY:Caregivers Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors Jamie Barlow and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Jamie Barlow and John Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday Jan 20th 8pm ET / 7pm CTRegister Here
URL:https://ulf.org/event/caregivers-online-support-group/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241208T120000
DTEND;TZID=America/Chicago:20241208T130000
DTSTAMP:20260406T044612
CREATED:20240115T204251Z
LAST-MODIFIED:20250117T173727Z
UID:7698-1733659200-1733662800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here
URL:https://ulf.org/event/caregivers-support-group-12/
CATEGORIES:support group
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2024/01/12-December.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241124T130000
DTEND;TZID=America/Chicago:20241124T140000
DTSTAMP:20260406T044612
CREATED:20240115T204133Z
LAST-MODIFIED:20241003T164713Z
UID:7695-1732453200-1732456800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here https://us02web.zoom.us/meeting/register/tZAkcu6tqzojG9QDAaqPyml1YvS8skoO83qg \n 
URL:https://ulf.org/event/caregivers-support-group-11/
CATEGORIES:support group
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2024/01/11-November.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241027T120000
DTEND;TZID=America/Chicago:20241027T130000
DTSTAMP:20260406T044612
CREATED:20240115T204015Z
LAST-MODIFIED:20241003T165159Z
UID:7692-1730030400-1730034000@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here https://us02web.zoom.us/meeting/register/tZUqceCrqz8iH9a-l6zuKZu_4X5AOAsqrF8l#/registration \n  \n 
URL:https://ulf.org/event/caregivers-support-group-10/
CATEGORIES:support group
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2024/01/10-October.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241001T190000
DTEND;TZID=America/Chicago:20241001T200000
DTSTAMP:20260406T044612
CREATED:20240115T203848Z
LAST-MODIFIED:20241001T185940Z
UID:7689-1727809200-1727812800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here \n 
URL:https://ulf.org/event/caregivers-support-group-9/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240825T120000
DTEND;TZID=America/Chicago:20240825T130000
DTSTAMP:20260406T044612
CREATED:20240115T202336Z
LAST-MODIFIED:20240822T212258Z
UID:7686-1724587200-1724590800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here
URL:https://ulf.org/event/caregivers-support-group-8/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape.png
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