Alex TLC Community Weekend 2021

Virtual

Alex TLC Community Weekend on the 20th & 21st November, is designed to bring together sufferers of leukodystrophy and their families, alongside doctors, researchers and scientists from around the world to meet, learn and support one another over a weekend of talks and activities. Dr John Livingston will be joining to give his update about …

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Knockout ALD: Run for ALD, Cure the Boys (5K/1 mile)

Knockout ALD organizes and hosts the Run for ALD, Cure the Boys 5K and a one-mile-walk event in Maryland Heights, Missouri, to raise money for the ALD Research Fund at the University of Minnesota. This year’s event will be in person and virtual, on November 20, 2021. Email Julie at runforALD@yahoo.com with questions. Website: www.knockoutald.com

ALSP Community Support Group Meeting

Virtual

Sister's hope Foundation presents - ALSP Community Support Group Meeting (Guest Speaker: Cynthia Beers, – Owner at Red Head Yoga, Author of Mindful Yoga for Teen Anxiety & Mindful Yoga for Adult Anxiety) https://sistershopefoundation.com/events/caregiver-support-group-meeting-3/

ALD Connect: Community Call: Symptomatic Women

January 24 @ 7:00 pm - 8:00 pm EST   Please join us for a community call on Monday, January 24th at 7 PM EST for symptomatic women facilitated by Kathleen O’Sullivan-Fortin and Janis Sherwood. Please reach out to info@aldconnect.org if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eizzsb5y9fb04ad9   **Please do …

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ALD Connect: Community Call: AMN Men

January 25 @ 7:00 pm - 8:00 pm EST Please join us for a community call facilitated by Ken Dieffenbach and Justin D’Agostino on Tuesday, January 25th at 7 PM EST for AMN men. Please reach out to info@aldconnect.org if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eizzsb4obed2c5ee   **Please do not …

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ALD Connect: Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

January 26 @ 7:30 pm - 8:30 pm EST Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, January 26th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to info@aldconnect.org with any questions. Please use the following …

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