Upcoming Webinar: Activities and Fitness for the whole family
2026-03-22 14:00 - 15:00 UTC
Activities and Fitness for the Whole Family!

Join the United Leukodystrophy Foundation for an inspiring and informative webinar designed for families, adults, and children living with Leukodystrophies, as well as the loved ones and friends who walk beside them on this journey. This session will explore meaningful ways to support physical health, emotional well-being, and quality of life through accessible activities, fitness, and everyday wellness practices.

Living with Leukodystrophy brings unique challenges, but it also reveals incredible strength, resilience, and community. This webinar will highlight practical ideas for incorporating movement, healthy routines, and adaptive activities into daily life—no matter your age, ability, or stage of the journey. Whether it’s gentle exercise, family-centered activities, or simply finding moments of joy and connection, you will discover options that empower and uplift.

Most importantly, this is a space of encouragement, understanding, and hope. You will connect with others who truly understand, learn from shared experiences, and be reminded of an important truth:

You are not alone.

Together, we will explore opportunities that help individuals and families live fuller, healthier, and more connected lives.

Presented by: Margaret Halter, ULF AmbassadorHosted by: ULF Ambassador United Leukodystrophy Foundation

Who Should Join:Families -adults, children with disabilities and any other family members who want to be part of the fun!

Meeting Details:Sunday March 22nd, 2026 1 pm CST / 2 pm EST

Sunday 4/12/26 Online Caregiver Support Group
2026-04-12 12:00 - 13:00 (America/Chicago)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Sunday, April 12, 2026 @ 1:00 PM ET / 12:00 PM CT

Monday 5/18/26 Online Caregiver Support Group
2026-05-18 20:00 - 21:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from ULF Ambassadors Margaret Halter and Roger Locy, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Monday, May 18, 2026 @ 8:00 PM ET / 7:00 PM CT

Monday 7/20/26 Online Caregiver Support Group
2026-07-20 20:00 - 21:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from ULF Ambassadors Margaret Halter and Roger Locy, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Monday, July 20, 2026 @ 8:00 PM ET / 7:00 PM CT

Sunday 8/9/26 Online Caregiver Support Group
2026-08-09 13:00 - 14:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:

Sunday, August 9, 2026 @ 1:00 PM ET / 12:00 PM CT

Monday 9/21/26 Online Caregiver Support Group
2026-09-21 20:00 - 21:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from ULF Ambassadors Margaret Halter and Roger Locy, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Monday, September 21, 2026 @ 8:00 PM ET / 7:00 PM CT

Sunday 10/11/26 Online Caregiver Support Group
2026-10-11 13:00 - 14:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Sunday, October 11, 2026 @ 1:00 PM ET / 12:00 PM CT

Monday 11/16/26 Online Caregiver Support Group
2026-11-16 20:00 - 21:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from ULF Ambassadors Margaret Halter and Roger Locy, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Monday, November 16, 2026 @ 8:00 PM ET / 7:00 PM CT

Sunday 12/13/26 Online Caregiver Support Group
2026-12-13 13:00 - 14:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends. Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Sunday, December 13, 2026 @ 1:00 PM ET / 12:00 PM CT

Monday 1/18/27 Online Caregiver Support Group
2027-01-18 20:00 - 21:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from ULF Ambassadors Margaret Halter and Roger Locy, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Monday, January 18, 2027 @ 8:00 PM ET / 7:00 PM CT

Sunday 2/14/27 Online Caregiver Support Group
2027-02-14 13:00 - 14:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Sunday, February 14, 2027 @ 1:00 PM ET / 12:00 PM CT
