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X-WR-CALNAME:United Leukodystrophy Foundation
X-ORIGINAL-URL:https://ulf.org
X-WR-CALDESC:Events for United Leukodystrophy Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241201T130000
DTEND;TZID=America/Chicago:20241201T140000
DTSTAMP:20260813T033003
CREATED:20241104T165118Z
LAST-MODIFIED:20241104T205135Z
UID:11657-1733058000-1733061600@ulf.org
SUMMARY:Mental Health Over the Holidays - WEBINAR
DESCRIPTION:As we approach the holiday season\, it is important to remember that holidays can be stressful. This stress can worsen symptoms of a mental health condition\, such as depression\, anxiety\, and loneliness. Please join Sarah Stoney\, MSW\, LCSW for an informative presentation and discussion on strategies to cope with holiday stress. \nSarah Stoney\, MSW\, LCSW is a Social Worker\, Division of Neurology  at Children’s Hospital of Philadelphia (CHOP) \nRegister here
URL:https://ulf.org/event/mental-health-over-the-holidays-webinar/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/11/Mental-Health-holiday.png
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241124T130000
DTEND;TZID=America/Chicago:20241124T140000
DTSTAMP:20260813T033003
CREATED:20240115T204133Z
LAST-MODIFIED:20241003T164713Z
UID:7695-1732453200-1732456800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here https://us02web.zoom.us/meeting/register/tZAkcu6tqzojG9QDAaqPyml1YvS8skoO83qg \n 
URL:https://ulf.org/event/caregivers-support-group-11/
CATEGORIES:support group
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2024/01/11-November.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241103T130000
DTEND;TZID=America/Chicago:20241103T140000
DTSTAMP:20260813T033003
CREATED:20241024T174702Z
LAST-MODIFIED:20241024T175247Z
UID:11506-1730638800-1730642400@ulf.org
SUMMARY:Adaptive Toys & Games Webinar
DESCRIPTION:  \nLindsey White\, Certified Therapeutic Recreation Specialist\, Holland Bloorview Kids Rehabilitation Hospital\, Toronto\, Canada\, will present on accessible recreation opportunities and modifications. \nMany of us enjoy playing games and participating in activities. A simple adaptation can allow for players of all capabilities to join in on the fun. Learn some neat methods and tools to help the physically challenged feel included. \nClick here to register!
URL:https://ulf.org/event/adaptive-toys-games-webinar/
LOCATION:https://us02web.zoom.us/j/89329347963?pwd=vcutbKLr8qEYPiuCTdleJKXgo1mQCD.1
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/10/Adaptive-Toys-Games-Facebook-Post.png
ORGANIZER;CN="United Leukodystrophy Foundation":MAILTO:office@ulf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241027T120000
DTEND;TZID=America/Chicago:20241027T130000
DTSTAMP:20260813T033003
CREATED:20240115T204015Z
LAST-MODIFIED:20241003T165159Z
UID:7692-1730030400-1730034000@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here https://us02web.zoom.us/meeting/register/tZUqceCrqz8iH9a-l6zuKZu_4X5AOAsqrF8l#/registration \n  \n 
URL:https://ulf.org/event/caregivers-support-group-10/
CATEGORIES:support group
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2024/01/10-October.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241006T130000
DTEND;TZID=America/Chicago:20241006T140000
DTSTAMP:20260813T033003
CREATED:20240910T211905Z
LAST-MODIFIED:20241001T175627Z
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SUMMARY:Newly Diagnosed: What Comes Next?
DESCRIPTION:Join us for the “Newly Diagnosed: What Comes Next? webinar with Stephanie Keller\, MD\, where she will discuss the steps you should consider taking after a new diagnosis. \nStephanie Keller\, MD\, is a Pediatric Neurologist at Children’s Healthcare of Atlanta and Associate Professor of pediatrics and neurology at Emory University School of Medicine. She serves as Medical Director of the Neurogenetic and Metabolic Disease Program\, as well as Director of the Leukodystrophy Care Network Certified Center at Children’s. \nRegister here: https://us02web.zoom.us/meeting/register/tZAvdeyhrj4uGtZTwFULr1SBh_A5uSFPSDu6
URL:https://ulf.org/event/newly-diagnosed-what-comes-next/
LOCATION:https://us02web.zoom.us/j/84225905402?pwd=JOXPJ7YdfGePljPisdb8hQXI63IUb6.1
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/09/Newly-Diagnosed1.png
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241001T190000
DTEND;TZID=America/Chicago:20241001T200000
DTSTAMP:20260813T033003
CREATED:20240115T203848Z
LAST-MODIFIED:20241001T185940Z
UID:7689-1727809200-1727812800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here \n 
URL:https://ulf.org/event/caregivers-support-group-9/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape7.png
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240908T130000
DTEND;TZID=UTC:20240908T140000
DTSTAMP:20260813T033003
CREATED:20240815T211743Z
LAST-MODIFIED:20240815T211743Z
UID:11175-1725800400-1725804000@ulf.org
SUMMARY:WEBINAR: Meet The Ambassadors
DESCRIPTION:At ULF’s June conference\, we announced our Ambassador Program. Ambassadors are people who have lived experience with leukodystrophy\, and are therefore\, the best candidates to understand and help address your needs. You may recall the first time you heard the word leukodystrophy and how you felt. Many feel lost\, alone\, and uncertain as to where to turn. \nThe Ambassador Program formalizes and expands the support ULF has been providing to the community for so many years. Through regional and local Ambassadors\, we guide patients and families through their journey at their own pace. This is done through offering education\, tools and resources specifically designed to help those who are affected by leukodystrophy\, so they are better informed and the sense of feeling so alone is reduced. You will meet our Ambassadors and learn about their backgrounds and commitment to supporting other affected patients and families. \nRegister here  
URL:https://ulf.org/event/webinar-meet-the-ambassadors/
LOCATION:Virtual
CATEGORIES:Event,Webinar
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/08/Meet-the-Ambassadors-Webinar-1920-x-1080-px1-1.png
ORGANIZER;CN="United Leukodystrophy Foundation":MAILTO:office@ulf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240825T120000
DTEND;TZID=America/Chicago:20240825T130000
DTSTAMP:20260813T033003
CREATED:20240115T202336Z
LAST-MODIFIED:20240822T212258Z
UID:7686-1724587200-1724590800@ulf.org
SUMMARY:Caregivers Support Group
DESCRIPTION:Register here
URL:https://ulf.org/event/caregivers-support-group-8/
CATEGORIES:support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2024/01/Caregiver-Online-Support-Group-Facebook-Post-Landscape.png
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