Sunday 12/13/26 Online Caregiver Support Group
2026-12-13 13:00 - 14:00 (America/New_York)
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends. Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Sunday, December 13, 2026 @ 1:00 PM ET / 12:00 PM CT

Monday 1/18/27 Online Caregiver Support Group
2027-01-18 20:00 - 21:00
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from ULF Ambassadors Margaret Halter and Roger Locy, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Monday, January 18, 2027 @ 8:00 PM ET / 7:00 PM CT

Sunday 2/14/27 Online Caregiver Support Group
2027-02-14 13:00 - 14:00
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support.

Caring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion, understanding, and practical advice. Whether you’re seeking emotional support, tips for managing day-to-day responsibilities, or simply a place to talk with others who understand, this group is here for you.

What to Expect:

A safe, nonjudgmental environment to share your experiences and feelings.

Peer-to-peer support from caregivers who understand your journey.

Guidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador, who bring both personal and community-based expertise.

Who Should Join:This group is open to caregivers of individuals affected by leukodystrophies, including parents, spouses, partners, family members, or close friends.

Let this be a place of connection and strength for you as you continue your caregiving journey. Together, we can support one another and build a stronger community.

Meeting Details:Sunday, February 14, 2027 @ 1:00 PM ET / 12:00 PM CT
