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SUMMARY:ULF Webinar: Family Planning as a Carrier
DESCRIPTION:Join us for an insightful webinar\, “Family Planning as a Carrier\,” hosted by Julie Cohen\, ScM\, CGC from Kennedy Krieger Institute. \n\n\n\nThis webinar will offer valuable information and a supportive space for carriers and their families to learn\, ask questions\, and feel empowered in their family planning journey. \n\n\n\nWhether you are beginning to explore family planning or looking for expert advice tailored to carriers\, this session is for you. Don’t miss this opportunity to gain knowledge and connect with a trusted expert in the field. \n\n\n\n\n\n\nWho Should Join:This session is designed for individuals and their family\, who carry genetic mutations linked to leukodystrophies and are exploring family planning options. \n\n\n\nMeeting Details:Sunday February 2nd\, 2025 1pm CST / 2pm EST
URL:https://ulf.org/event/ulf-webinar-family-planning-as-a-carrier/
CATEGORIES:Webinar
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SUMMARY:Caregiver Online Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Marcie Flores ULF Board Member and Jamie Barlow ULF Ambassador\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Sunday\, February 9th\, 2025 @ 12:00 PM CST / 1:00 PM ESTRegister Here
URL:https://ulf.org/event/caregiver-online-support-group-12/
CATEGORIES:support group
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