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X-WR-CALDESC:Events for United Leukodystrophy Foundation
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SUMMARY:ULF Webinar: First Aid and CPR Webinar: Modified strategies that guide you to care for your child safely and confidently
DESCRIPTION:Presented by: Christina Schnell Community Services Coordinator St. John Ambulance  \n\n\n\nHosted by: Marla Chapleau ULF Ambassador United Leukodystrophy Foundation  \n\n\n\n\n\n\nHello – my name is Christina and as a parent of a child with a disability who has had to navigate the challenges of modifying emergency care standards\, I understand the unique needs and concerns families face. My daughter Natalie has SMA – which has lead her to choking incidents\, open wounds\, mental health and more.I have been in the First Aid world for over 20 years with certificates as a lifeguard\, first aid instructor and firefighter; I am here to share modified strategies that guide you to care for your child safely and confidently. \n\n\n\n\n\n\nWho Should Join:Ideal for parents\, guardians\, and care providers supporting children with disabilities or complex health conditions. Medical professionals\, educators\, and community members seeking to better understand adaptive first aid strategies are also welcome. \n\n\n\nMeeting Details:Sunday November 9th\, 2025 1 pm CST / 2 pm EST
URL:https://ulf.org/event/ulf-webinar-first-aid-and-cpr-webinar-modified-strategies-that-guide-you-to-care-for-your-child-safely-and-confidently/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2025/10/First-Aid-and-CPR.jpg
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DTSTART;TZID=UTC:20251117T200000
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SUMMARY:Caregiver Support Group 11/17/25
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors\, Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Margaret Halter and Roger Locy ULF Ambassadors\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, November 17\, 2025 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/caregiver-support-group-11-17-25/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/08/11.17.25-Caregiver-Online-Support-Group-ULF.png
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