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DTSTART;TZID=America/New_York:20260118T140000
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SUMMARY:ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult
DESCRIPTION:Catherine (Catie) Becker is a Pediatric Nurse Practitioner at Massachusetts General Hospital (MGH). Catie received her master’s degree in Pediatric Acute/Chronic Advanced Practice Nursing from the University of Pennsylvania. She has worked in the MGH Leukodystrophy clinic since 2011\, working with a multidisciplinary team caring for both pediatric and adult patients with leukodystrophy. \n\n\n\n\n\n\n\nPresented by: Catherine L. Becker\, CNP  Hosted by: Marla Chapleau ULF Ambassador United Leukodystrophy Foundation \n\n\n\n\n\n\n\n\n\n\nWho Should Join:Families\, caregivers\, and advocates preparing for the transition from pediatric to adult care and guardianship for individuals with lifelong or complex medical conditions. \n\n\n\nMeeting Details:Sunday January 18th\, 2025 1 pm CST / 2 pm EST
URL:https://ulf.org/event/ulf-webinar-the-guardianship-transition-minor-child-to-legal-adult/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://ulf.org/wp-content/uploads/2025/10/The-Guardianship-Transition-Minor-Child-to-Legal-Adult.jpg
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DTSTART;TZID=UTC:20260119T200000
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SUMMARY:Caregiver Support Group 1/19/26
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors\, Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from Margaret Halter and Roger Locy ULF Ambassadors\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, January 19\, 2026 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/caregiver-support-group-1-19-26/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2025/08/1.19.26-Caregiver-Online-Support-Group-ULF.png
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