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X-WR-CALNAME:United Leukodystrophy Foundation
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X-WR-CALDESC:Events for United Leukodystrophy Foundation
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SUMMARY:Monday 5/18/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, May 18\, 2026 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/monday-5-18-26-online-caregiver-support-group/
CATEGORIES:Event,support group
ATTACH;FMTTYPE=image/png:https://ulf.org/wp-content/uploads/2026/02/Caregiver-Support-5.18.26.png
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DTSTART;TZID=Africa/El_Aaiun:20260531T190000
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DTSTAMP:20260603T010308
CREATED:20260515T151607Z
LAST-MODIFIED:20260515T162145Z
UID:15757-1780254000-1780257600@ulf.org
SUMMARY:Intro to Adaptive Tai Chi: Safe Movement for Every Ability
DESCRIPTION:Tai chi is a mindful movement practice that improves relaxation skills\, mental focus\, and physical alignment. With nearly 15 years of tai chi practice and more than two decades as a research physical therapist for people with neurodegenerative disorders\, Jen is enthusiastic to offer classes in tai chi that are accessible to all ages\, abilities\, and physical conditions. Certified by Tai Chi Health (R) to teach programs in Tai Chi Fundamentals Adapted and Tai Chi Prime (evidence-based fall prevention program)\, Jen will offer an introductory class that can be done in sitting\, standing with support (walker\, cane\, chair for support)\, or standing without support.
URL:https://ulf.org/event/intro-to-adaptive-tai-chi-safe-movement-for-every-ability/
CATEGORIES:Webinar
ORGANIZER;CN="United Leukodystrophy Foundation":MAILTO:office@ulf.org
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