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X-WR-CALNAME:United Leukodystrophy Foundation
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X-WR-CALDESC:Events for United Leukodystrophy Foundation
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SUMMARY:Monday 9/21/26 Online Caregiver Support Group
DESCRIPTION:Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy\, this group provides a safe and welcoming space for caregivers to connect\, share experiences\, and find mutual support. \n\n\n\nCaring for a loved one with leukodystrophy can be both rewarding and challenging. This support group is here to help caregivers navigate the journey with compassion\, understanding\, and practical advice. Whether you’re seeking emotional support\, tips for managing day-to-day responsibilities\, or simply a place to talk with others who understand\, this group is here for you. \n\n\n\nWhat to Expect: \n\n\n\n\nA safe\, nonjudgmental environment to share your experiences and feelings.\n\n\n\nPeer-to-peer support from caregivers who understand your journey.\n\n\n\nGuidance and insights from ULF Ambassadors Margaret Halter and Roger Locy\, who bring both personal and community-based expertise.\n\n\n\n\nWho Should Join:This group is open to caregivers of individuals affected by leukodystrophies\, including parents\, spouses\, partners\, family members\, or close friends. \n\n\n\nLet this be a place of connection and strength for you as you continue your caregiving journey. Together\, we can support one another and build a stronger community. \n\n\n\nMeeting Details:Monday\, September 21\, 2026 @ 8:00 PM ET / 7:00 PM CT
URL:https://ulf.org/event/monday-9-21-26-online-caregiver-support-group/
CATEGORIES:Event,support group
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DTSTART;TZID=America/Chicago:20260927T130000
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DTSTAMP:20260825T212108Z
CREATED:20260825T174440Z
LAST-MODIFIED:20260825T212108Z
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SUMMARY:ULF Webinar: All About IEP’s
DESCRIPTION:All About IEP’s\n\n\n\n \n\n\n\nNavigating special education and the IEP process can feel overwhelming. Join ULF Ambassador Misty Powers for a practical discussion based on Wrightslaw: All About IEPs\, focusing on how parents and educators can better understand\, navigate\, and advocate throughout the IEP process. \n\n\n\nThe discussion will cover key components of an IEP\, effective advocacy strategies\, parent participation\, services and accommodations\, measurable goals\, progress monitoring\, and important legal rights and procedural safeguards. Participants will also learn about common challenges families face and practical ways to prepare for and participate more confidently in IEP meetings. \n\n\n\nThis webinar is for educational and informational purposes and is not a substitute for professional legal advice. \n\n\n\nPresented by: Misty Powers\, ULF AmbassadorHosted by: Marla Chapleau\, ULF Ambassador United Leukodystrophy Foundation \n\n\n\nWho Should Join:Families navigating special education needs\, as well as educators and others who support children with disabilities. \n\n\n\nMeeting Details:Sunday September 27th\, 2026 1 pm CT / 2 pm ET
URL:https://ulf.org/event/ulf-webinar-all-about-ieps/
CATEGORIES:Webinar
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