upcoming events

Event Information:

  • Tue

    X-linked adrenoleukodystrophy by Marc Engelen

    3:00 pmAmsterdam, Berlin, Rome, Stockholm, Vienna

    European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).

    The speaker is Pediatric Neurologist from the University Medical Center in Amsterdam, the Netherlands. He is an expert on adrenoleukodystrophy and other neurodegenerative diseases.

    Register Here: https://zoom.us/webinar/register/7915804731311/WN_Ii7-CQVORVCWTfsUONVsxg

Latest news

Share your story

Sam Buck, VWM

“Until February 2013, our 2-year-old son Sam was completely normal child, no problems with his pregnancy or birth, he met every milestone, and overall was…
Read More
Scroll to Top