• Sun
    25
    Oct
    2020
    Wed
    28
    Oct
    2020

    Family weekend to Disneyland Paris 2020

    Disneyland Paris

    MPS Society

    MPS Society is inviting members and their families to join us for a trip of a lifetime to Disneyland Paris. Families need time to have fun together and create magical memories to share, which is especially important for families who have a child with a life-limiting condition.

    https://www.mpssociety.org.uk/disneyland-paris

  • Sun
    01
    Nov
    2020

    Family day to Lapland UK

    Whitmoor Forest Swinley Road, Ascot, Berkshire, SL5 8BD , UK

    MPS Society

    Always a popular event we can't wait to enjoy the wonderment of childhood through this magical world where Father Christmas and his elves come to life in Whitmoor Forest, Ascot.

    https://www.mpssociety.org.uk/events2020

  • Sat
    07
    Nov
    2020

    2020 p4KR Halfway to Derby Fundraiser

    The Meritage Restaurant Glendale, Ohio

    Partners For Krabbe Research

    Proceeds from sales of the book, Just Like Me! are used for funding programs that Partners For Krabbe Research supports.

    https://www.krabbes.org/events

  • Tue
    10
    Nov
    2020

    All Day MPS l BMT

    Great Ormond Street Hospital Great Ormond Street, Holborn, London WC1N 3JH, UK

    MPS Society

    Clinics allow individuals affected by MPS, Fabry and or a related disease to see a specialist consultant and, where possible, other medical professionals on the same day. This reduces the need to attend a number of separate appointments. Clinics also enable individuals and families to meet with one another as well as with members of the support and advocacy team who also attend the clinics.

    https://www.mpssociety.org.uk/eventsandclinics

  • Thu
    12
    Nov
    2020
    Sun
    15
    Nov
    2020

    Rare Mothers Wellness Retreat

    BARRETT FAMILY RANCH Orange, California, United States of America

    ANGEL AID

    Retreat Facilitator: Laura Riordan, PhD – A holistic life coach and author of the Sustainable Mom workshop series with 20 yrs in the mind and body wellness industry.

    https://angelaidretreat.funraise.org/

  • Sat
    14
    Nov
    2020

    Rooted In Rare

    8:00 amtba

    United MSD Foundation

  • Fri
    20
    Nov
    2020

    All Day MPS VI

    Birmingham Children's Hospital, Steelhouse Ln, Birmingham B4 6NH, UK

    MPS Society

    Clinics allow individuals affected by MPS, Fabry and or a related disease to see a specialist consultant and, where possible, other medical professionals on the same day. This reduces the need to attend a number of separate appointments. Clinics also enable individuals and families to meet with one another as well as with members of the support and advocacy team who also attend the clinics.

    https://www.mpssociety.org.uk/eventsandclinics

  • Tue
    24
    Nov
    2020

    All Day MPS IV

    Great Ormond Street Hospital Great Ormond Street, Holborn, London WC1N 3JH, UK

    MPS Society

    Clinics allow individuals affected by MPS, Fabry and or a related disease to see a specialist consultant and, where possible, other medical professionals on the same day. This reduces the need to attend a number of separate appointments. Clinics also enable individuals and families to meet with one another as well as with members of the support and advocacy team who also attend the clinics.

    https://www.mpssociety.org.uk/eventsandclinics

  • Sat
    12
    Dec
    2020

    Aidan's Rides 2020

    Temecula, California

    Aidan Jack Seeger Foundation

    https://www.aidanhasaposse.org/ride-calendar-2020.html

  • Fri
    18
    Dec
    2020

    All Day MPS lll Sanfilippo

    Birmingham Children's Hospital, Steelhouse Ln, Birmingham B4 6NH, UK

    MPS Society

    https://www.mpssociety.org.uk/eventsandclinics

  • Tue
    22
    Dec
    2020

    All Day MPS l BMT

    Great Ormond Street Hospital Great Ormond Street, Holborn, London WC1N 3JH, UK

    MPS Society

    Clinics allow individuals affected by MPS, Fabry and or a related disease to see a specialist consultant and, where possible, other medical professionals on the same day. This reduces the need to attend a number of separate appointments. Clinics also enable individuals and families to meet with one another as well as with members of the support and advocacy team who also attend the clinics.

    https://www.mpssociety.org.uk/eventsandclinics

  • Fri
    01
    Jan
    2021

    Cupcake Gala

    The Calliope Joy Foundation

    https://www.thecalliopejoyfoundation.org/aboutus

  • Wed
    13
    Jan
    2021
    Sat
    16
    Jan
    2021

    RE(ACT) Congress and IRDiRC Conference 2021

    Berlin, Germany

    The BLACKSWAN Foundation and IRDiRC, the International Rare Diseases Research Consortium

    It aims to bring together scientific leaders and experts and young scientists from a variety of breakthrough scientific fields to present cutting-edge research, exchange ideas, and discuss policies related to rare diseases research.

    https://www.react-congress.org/about/

  • Tue
    01
    Jun
    2021
    Sat
    05
    Jun
    2021

    14th biennial congress of the European Paediatric Neurology Society

    Scottish Event Campus (SEC) in Glasgow, United Kingdom.

    EPNS

    learn about the latest developments in the rapidly evolving field of child neurology including basic science, diagnostic methods and novel treatments.

    https://epns-congress.com/

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