News

Magical Memories Disney Raffle 2019

Buy tickets for a chance to win a Disney vacation for 4! Support the United Leukodystrophy Foundation with the purchase of a Magical Memories Disney Raffle ticket. The winner of the raffle will receive $1,050 in Disney gift cards redeemable toward admission, food or souvenirs; 4-night stay in one standard guest ...read more

In Memorial or Honorarium – December 2018

The ULF received donations in memorial or honorarium for the following during the month of December 2018. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Peter and Mary Ann Backenson: Thomas and Brooke Backenson Alex ...read more

Online Registry for Vanishing White Matter now available!

The VWM Registery is officially open! The Center for Childhood White Matter Disorders at the VU University Medical Center (VUmc) in Amsterdam, The Netherlands, has developed an online Registry for patients with Vanishing White Matter (VWM). The aim of the Registry is to collect as much insight in the disease ...read more

In Memorial or Honorarium – November 2018

The ULF received donations in memorial or honorarium for the following during the month of November 2018. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Liam Becker: Amy Becker Nathan and Kathryn Borge: John and Karen Sheahan Alex ...read more

In Memorial or Honorarium – October 2018

The ULF received donations in memorial or honorarium for the following during the month of October 2018. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Gregory Brown: John and Carol Brown Tory Brown: Julie Brown Zane Dial: Michael and ...read more

In Memorial or Honorarium – September 2018

The ULF received donations in memorial or honorarium for the following during the month of September 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF  Alex Bouley: Bernard and Alice Howard Levine Elizabeth DeSpelder Rawlins: Daniel Lombardo and Karen ...read more

In Memorial or Honorarium – August 2018

The ULF received donations in memorial or honorarium for the following during the month of August 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF  Gregory Brown: Michael Adamo, Theresa Hollnsteiner, Katelyn Tierney Thomas Cunningham: Sallie Griffiths Arwyn Hamilton: Debbie Stevens Noah Hinds: John and ...read more

2018 Benefit Drawing

The time has come once again for the United Leukodystrophy Foundation’s Annual Benefit Drawing fundraiser! Thanks to the involvement of our members, friends, and donors like you, we are able to continue to award vital funding to researchers, who strive to find new treatments for the leukodystrophies and to provide ...read more

In Memorial or Honorarium – July 2018

The ULF received donations in memorial or honorarium for the following during the month of July 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. IN HONOR OF  David Anderson: L3 Aerospace Systems Amari Ball: Ken and Diane Mobeck Louis Goldman ...read more

Leukodystrophy and genome sequencing: for genetically undiagnosed patients for the 100,000 genomes project

Henry Houlden, Professor of Neurology and Neurogenetics at the UCL Institute of Neurology and The National Hospital for Neurology and Neurosurgery, Queen Square, London is looking to collect blood samples via mail or at their London hospital. Learn more here: http://bit.ly/2w5RtSe If you are interested in participating, please contact: Henry Houlden Professor of Neurology and Neurogenetics, 7th floor ...read more