The ULF Scientific Review Committee reviewed the many, high-quality research grant applications that were submitted from around the world for ULF funding. We received 3 times as many proposals this round than last, and we appreciate all of the proposal submissions from devoted scientists. The United Leukodystrophy Foundation congratulates these gifted researchers, each of whom …
THANK YOU for participating in this year’s Benefit Drawing to raise money for leukodystrophy research. The drawing was held at the ULF office on Friday, September 30th. We congratulate these winners! Cheryl Serra of Missouri Betty Armbrust of Illinois Julie Malinowski of Michigan Kim Chaney of Illinois Phyllis Melick of Indiana Deb Bernshausen of Illinois …
The United Leukodystrophy Foundation is soliciting grant applications to support research in the leukodystrophies. Applications involving any of the leukodystrophies with budgets up to $30,000 (plus up to 10% indirect costs) will be accepted through November 14, 2016. The ULF Medical and Scientific Advisory Board will review applications for scientific merit, feasibility, and likelihood to advance …
This year’s ULF Scientific Symposium and Family Conference was held in Omaha July 28-30. It provided an important opportunity for medical professionals to share their research advances and for families affected by leukodystrophy to interact with doctors. Attendees enjoyed a fantastic wrap-up dinner celebration at the Omaha Aquarium. Visit the United Leukodystrophy Foundation Facebook page …
This is the second Father’s Day that the family will be spending without their dad. Since they can’t celebrate with him, they’re going to celebrate for him! They would love for you to join them as they celebrate their dad and yours at the 2nd Annual Paul Korth Memorial Father’s Day 5K. Come run, walk, eat, …
Fundraiser this Saturday! As the 2016 Miss Dallas, Brittany Tew is hosting “Miss Dallas 5K Benefiting the ULF” on Saturday, June 4th at Bachman Lake Park in Dallas: http://www.missdallas5k.com/ Brittany is a talented, ambitious young woman. She graduating from Baylor University with a 4.0 GPA, majoring in biology. At the age of 21, she has already …
CADASIL is a rare, genetic disease that is both vascular and neurologic in nature. The cureCADASIL Association is offering a CADASIL Summer Research Scholarship to a student working in CADASIL research each year. The scholarship is open to undergraduate and graduate students and provides $5,000 to the chosen student. All details are in this letter and the flyer. The application is …
Imagine your child experiencing an unexplained sudden loss of basic functions – a toddler who once constantly walked and ran, suddenly stumbling with each step; an infant with a healthy appetite, who once smiled and cooed, now crying inconsolably for every waking hour and only eating a few ounces of milk a day; a high …
Leukodystrophy Care Network Clinical Issues Survey Read More »
The United Leukodystrophy Foundation is delighted to welcome Marcie Flores as its Spanish interpreter! Marcie’s son is affected by 4H syndrome, and the family lives in the Chicago area. Marcie now serves with the ULF as a resource for Spanish-speaking families with questions about leukodystrophy. She can be reached at 708-998-8977 or [email protected].
The United Leukodystrophy Foundation is proud to announce its grants, which were recently awarded to two prominent researchers for their promising projects: Dr. Adeline Vanderver with Children’s National Health System for her study of “Unclassified Leukodystrophie and Leukoencephalopathies: Compassionate Access to State-of-the-art Diagnostic Care.” Dr. Weston Miller at the University of Minnesota for his work on “Characterization of the …
