The Board of Directors works very closely with the Medical and Scientific Advisory Board to support the needs of the ULF and the leukodystrophy community.
Board of Directors
President:
Robert Rauner
Lincoln, Nebraska
Vice President:
Ron Chapleau
Kincardine, Ontario, Canada
Treasurer:
Donna Skwirut
Palos Park, Illinois
Secretary:
Sa Von Rudenick
Minnetonka, Minnesota
Directors:
Joyce Changle
Carnegie, Pennsylvania
Kristie DeMarco
Windham, Maine
Marcie Flores
Joliet, Illinois
Dr. Joseph Hacia
Los Angeles, California
John Kaprich
Ankeny, Iowa
Dr. Stephanie Keller
Atlanta, Georgia
Margaret McIntyre
Chicago, Illinois
Shannon Reed
Biloxi, Mississippi
Marilyn Schmiedel
Pflugerville, Texas
John Wolf
Aloha, Oregon
Medical and scientific advisory board
Chair:
Genevieve Bernard, MD, FRCPC
McGill University
Montreal, Quebec, Canada
View Bio | View Website
Vice Chair:
Ali Fatemi, MD, MBA
Kennedy Krieger Institute
Johns Hopkins Medical Institutions
Baltimore, Maryland
View Bio | View Website
Directors:
Caroline Bergner, MD
University Hospital Leipzig
Leipzig, Germany
View Website
Enrico Bertini, MD
Bambino Gesu’ Children’s Research Hospital
Rome, Italy
View Website
Joshua Bonkowsky, MD, PhD
Primary Children’s Hospital
Salt Lake City, Utah
View Website
Andrea DeBarber, PhD
Oregon Health and Science University
Salt Lake City, Utah
View Website
Marc Engelen, MD, PhD
Amsterdam UMC
Amsterdam, The Netherlands
View Website
Stephan Kemp, PhD
Amsterdam UMC
Amsterdam, The Netherlands
View Website
Troy Lund, MSMS, FAAP, MD, PhD
University of Minnesota
Minneapolis, Minnesota
View Website
Gustavo H. B. Maegawa, MD, PhD, FACMG
Columbia University Irving Medical Center
New York, New York
View Website
Patricia L Musolino MD, PhD
Massachusetts General Hospital
Harvard Medical School
Boston, Massachusetts
View Website
Deborah Renaud, MD
Mayo Clinic
Rochester, Minnesota
View Website
Davide Tonduti, MD, PhD
V. Buzzi Children’s Hospital
Milano, Italy
View Website
Keith Van Haren, MD
Stanford University Medical Center
Palo Alto, California
View Website
Adeline Vanderver, MD
Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania
View Website
Nicole I. Wolf, MD, PhD
Amsterdam UMC
Amsterdam, The Netherlands
View Website
Staff
Chris Rice, Executive Director
chrisrice@ulf.org
Keely Mata, Director of Operations
keely@ulf.org
Tara Nuñez, Operations Assistant
tara@ulf.org