The Board of Directors works very closely with the Medical and Scientific Advisory Board to support the needs of the ULF and the leukodystrophy community.
Board of Directors
President:
Robert Rauner
Lincoln, Nebraska
Vice President:
Ron Chapleau
Kincardine, Ontario, Canada
Treasurer:
Alan Fingeroot
Bellevue, Washington
Secretary:
Margaret Halter
Mansfield, Ohio
Directors:
Joyce Changle
Carnegie, Pennsylvania
Yolanda Chacón-Serna
Bakersfield, California
Claudette Collier
Powers Lake, Wisconsin
Kristie DeMarco
Windham, Maine
Dr. Joseph Hacia
Los Angeles, California
Dr. Stephanie Keller
Atlanta, Georgia
Colleen Kintner
Redlands, California
Sa Von Rudenick
Minnetonka, Minnesota
Donna Skwirut
Palos Park, Illinois
John Wolf
Aloha, Oregon
Medical and scientific advisory board
Chairman:
Dr. Genevieve Bernard, MD, FRCPC
Montreal, Quebec, Canada
View Bio | View Website
Vice Chairman:
Ali Fatemi, MD, MBA
Baltimore, Maryland
View Bio | View Website
Directors:
Joshua Bonkowski, MD, PhD
Salt Lake City, Utah
View Website
Andrea DeBarber, PhD
Salt Lake City, Utah
View Website
Florian Eichler, MD
Boston, Massachusetts
View Website
Marc Engelen, PhD
Amsterdam, The Netherlands
View Website
Stephan Kemp, PhD
Amsterdam, The Netherlands
View Website
Troy Lund, MD, PhD
Minneapolis, Minnesota
View Website
Deborah Renaud, MD
Rochester, Minnesota
View Website
Muriel Stoppe, MD
Leipzig, Germany
View Website
Davide Tonduti, MD, PhD
Milano, Italy
View Website
Keith Van Haren, MD
Palo Alto, California
View Website
Adeline Vanderver, MD
Philadelphia, Pennsylvania
View Website
Staff
Keely Haag, Director of Operations
keely@ulf.org
Tatum Glas, Communications Manager
tatum@ulf.org
Tara Nuñez, Operations Assistant
tara@ulf.org