Registration now open!


Our ULF Conference brings together families and medical professionals across all of the leukodystrophies. Don’t miss this opportunity to learn, share, and connect! Doctors and researchers will be present to speak with parents and affected adults one on one! 
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About Us
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals. The Foundation is located in DeKalb, Illinois.  
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Recent News
01June 2019

The ULF received donations in memorial or honorarium for the following during the month of May 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at or by calling 815.748.3211. IN ...Read More

28May 2019

by John Wolf The ULF has been a part of my life for nearly 14 years. My involvement began shortly after my daughter, Ashley was diagnosed at the age of 10 with Cerebrotendinous Xanthomatosis (CTX) in 1994. After the initial shock ...Read More

28May 2019

by Colleen Kintner Kristy was 6 years of age when she was diagnosed with Metachromatic Leukodystrophy. We felt very lost and alone. We were blessed to have a quick diagnosis because Kristy's pediatrician had studied with one of the experts here in California ...Read More