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Our ULF Conference brings together families and medical professionals across all of the leukodystrophies. Don’t miss this opportunity to learn, share, and connect! Doctors and researchers will be present to speak with parents and affected adults one on one! 
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About Us
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals. The Foundation is located in DeKalb, Illinois.  
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Recent News
21April 2019

Worldwide, MLD occurs in 1 in 40,000 people, primarily children.  Early symptoms of MLD include trouble walking, impaired speech, and muscle weakness. The Embolden Study is conducting research for infants and children born with metachromatic leukodystrophy. Study overview: The Embolden Study is evaluating ...Read More

01April 2019

The ULF received donations in memorial or honorarium for the following during the month of March 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. IN ...Read More

01March 2019

The ULF received donations in memorial or honorarium for the following during the month of February 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN ...Read More