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2018 Family Conference & Scientific Symposium

2018 Conference Registration

Join us June 23-25, 2018 in Charlotte, North Carolina! Family Conference and Scientific Symposium registration is now open.

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About Us

The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals. The Foundation is located in DeKalb, Illinois.

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Recent News

06March 2018

In Memorial or Honorarium – February 2018

The ULF received donations in memorial or honorarium for the following during the month of February 2018. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN ...Read More

22February 2018

Live Webinar: Antisense as a Strategy for Treatment in Alexander Disease

Did you miss it? Watch the Webinar on YouTube! A question and answer session will follow the presentation. For more information, contact Albee Messing at 608.263.9191 or amessing@wisc.edu.

08February 2018

In Memorial or Honorarium – January 2018

The ULF received donations in memorial or honorarium for the following during the month of January 2018. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN ...Read More