Register now for the 2020 Virtual family conference!

The ULF is hosting streamed webinars June 25 – 27 on topics we could have featured at our in-person event. Even though the pandemic is keeping us from meeting face to face this year, the ULF is dedicated to providing quality educational content to the leukodystrophy community. This year, we will offer a series of live webinars, pre-recorded videos, and releasing additional text-based resources over the three days. 

How will the Live Webinars Work? 

The live webinars will be streamed through YouTube. No need to worry about downloading Zoom, or figuring out yet another app! If you are interested in participating in the live webinar sessions, you need to register by clicking on “Register Now” below – by doing so, you will receive access via a streaming link that we will email to you the week of June 22nd. 

You can ask questions and have a discussion with the speaker during live sessions as time allows. Please note: Prior to the session, you’ll need to have a YouTube account or a Google/Gmail account in order to submit questions to the speaker through the YouTube chat feature. 

The Agenda 

Please note, this agenda is subject to change. We will continue to update the agenda as we have speakers and their specific topics confirmed.

The Cost – Free! 

We know that the COVID-19 pandemic has had significant financial impact across the world, and so we are waiving the registration fee this year to ensure that anyone that wants to participate is able to. If you are able to, we hope that you will donate to support the ULF Conference and mission to provide educational content about the leukodystrophies to every family who needs it.

Thank you for being a part of the ULF Community and we look forward to “seeing” you at the 2020 conference!


Register now

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