The ULF is dedicated to offering families affected by leukodystrophy resources to thrive. Through our live webinar series and support groups, we hope that families will benefit from sharing knowledge and experiences with each other. As we continue to grow this program, we will post upcoming dates for webinars and support groups here.

Please note, Support Group sessions are NOT recorded. They will never be recorded, and the discussions that occur during the support group are not made public in any way.

Webinar sessions ARE recorded. The recordings are posted to the ULF Office YouTube Channel. If you participate in a recorded webinar session – please note that the recordings may have your name, voice, video, and/or image that could appear to the public.

Caregiver Support Groups

March 29, 2023 – 7 PM Central
Register here

April 26, 2023 – 7 PM Central
Register here

May 31, 2023 – 7 PM Central
Register here

There will be no June support group, as we hope you will join us for the Family Conference!

July 26, 2023 – 7 PM Central
Register here

August 30, 2023 – 7 PM Central
Register here


There are no webinars scheduled at this time. Check back in the future for added dates!