The ULF is dedicated to offering families affected by leukodystrophy resources to thrive. Through our live webinar series and support groups, we hope that families will benefit from sharing knowledge and experiences with each other. As we continue to grow this program, we will post upcoming dates for webinars and support groups here. This schedule is subject to change at any time – registrants of sessions that experience changes will be notified as soon as possible, and this page will always be kept up to date with the most accurate information.

Please note that Support Group sessions are NOT recorded. They will never be recorded, and the discussions that occur during the support group are not made public in any way. The Webinar sessions ARE recorded. The recordings are posted to the ULF Office YouTube Channel in the following 72 hours. If you participate in a recorded webinar session – know that the ULF will post the recordings and your name, voice, video, and/or image may appear to the public. Please take that into consideration when participating.

Wednesday, May 25th, 7 PM Central: Webinar
Pre-Conference Meet Up: What to Expect at the 2022 ULF Family Conference
Register here:

The ULF Family Conference will be held on June 24 and June 25th. Select sessions will be recorded and/or streamed for those who cannot attend in person. Please click here for further information about this year’s event!

Further support groups and webinars will be scheduled for July – December of 2022. This page will be updated as we continue to secure speakers and finalize topics.

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