Name: Caregivers Support Group
Start: 2025-06-15T12:00:00+00:00
End: 2025-06-15T13:00:00+00:00

March 2025

Sun 16

Featured March 16 @ 3:00 pm UTC+0

ULF Webinar: Addressing Digestive Issues from Infancy through Adolescence

Digestive issues related to leukodystrophy can be challenging across the ages and particularly with children. Please join Dr. Nichole Jaffe, a Pediatrician and Complex Care physician at Children’s Hospital of Philadelphia, who will provide an indepth discussion of the various digestive issues children and adolescences face and how to address them. Meeting Details:Monday Jan 20th …

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Mon 17

Featured March 17 @ 7:00 pm UTC+0

Caregiver Online Support Group

Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can …

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April 2025

Sun 13

Featured April 13 @ 12:00 pm UTC+0

Caregiver Online Support Group

Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Memeber Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one …

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