ALSP Community Support Group Meeting

Virtual

Sister's hope Foundation presents - ALSP Community Support Group Meeting (Guest Speaker: Cynthia Beers, – Owner at Red Head Yoga, Author of Mindful Yoga for Teen Anxiety & Mindful Yoga for Adult Anxiety) https://sistershopefoundation.com/events/caregiver-support-group-meeting-3/

ALD Connect: Community Call: Symptomatic Women

January 24 @ 7:00 pm - 8:00 pm EST   Please join us for a community call on Monday, January 24th at 7 PM EST for symptomatic women facilitated by Kathleen O’Sullivan-Fortin and Janis Sherwood. Please reach out to info@aldconnect.org if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eizzsb5y9fb04ad9   **Please do …

ALD Connect: Community Call: Symptomatic Women Read More »

ALD Connect: Community Call: AMN Men

January 25 @ 7:00 pm - 8:00 pm EST Please join us for a community call facilitated by Ken Dieffenbach and Justin D’Agostino on Tuesday, January 25th at 7 PM EST for AMN men. Please reach out to info@aldconnect.org if you have any questions. Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07eizzsb4obed2c5ee   **Please do not …

ALD Connect: Community Call: AMN Men Read More »

ALD Connect: Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children

January 26 @ 7:30 pm - 8:30 pm EST Please join us for a community call facilitated by Suzanne Flynn, Tara Meady, and Kathleen O’Sullivan Fortin on Wednesday, January 26th at 7:30 PM EST for Newborn Screening, Young Families, and Parents of Asymptomatic Children. Please reach out to info@aldconnect.org with any questions. Please use the following …

ALD Connect: Community Call: Newborn Screening, Young Families, Parents of Asymptomatic Children Read More »

Webinar: ‘Basal ganglia diseases in childhood’​ by Belén Perez Dueñas

Virtual

Joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). The speaker is a Specialist in Pediatric Neurology at Vall d'Hebron University Hospital and Principal Investigator in Pediatric Movement Disorders at the Vall d'Hebron Research Institute. Her work aims to improve …

Webinar: ‘Basal ganglia diseases in childhood’​ by Belén Perez Dueñas Read More »

14th Congress of the European Paediatric Neurology Society (EPNS)

The EPNS Congress provides an opportunity to learn about the latest developments in the rapidly evolving field of child neurology, including basic science, diagnostic methods, and novel treatments. You can network with colleagues and industry partners all focused on delivering the best possible care for children with neurological disorders.https://epns-congress.com/

ASGCT 25th Annual Meeting

The American Society of Gene and Cell Therapy’s (ASGCT) Annual Meeting, celebrating its 25th year in 2022, is the premier event for professionals in gene and cell therapy. The four-day meeting—and one preceding day of Pre-Meeting Workshops—is the best place for people in the field to learn from the latest scientific research, stay up to …

ASGCT 25th Annual Meeting Read More »

Webinar: ‘Mitochondrial leukodystrophies’ by Anna Ardissone

Virtual

Educational webinars on rare neurologicial, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). The speaker is Child Neurologist at the Institute of Neurology Carlo Besta, Milan, Italy. Time May 24, 2022 03:00 PM in Amsterdam, Berlin, …

Webinar: ‘Mitochondrial leukodystrophies’ by Anna Ardissone Read More »

2022 RARE Drug Development Symposium

The Rare Drug Development Symposium, in partnership with the Orphan Disease Center of the University of Pennsylvania, brings together rare disease advocacy leaders and researchers to identify barriers to research, envision solutions, and accelerate progress for our communities. This two-day, in-person-only summit offers a unique opportunity to engage in interactive small-group workshops with experts and …

2022 RARE Drug Development Symposium Read More »

Scroll to Top