The ULF received donations in memorial or honorarium for the following during the month of September 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Alyssa Beck: Linda Beck
Shawn Blake: Nick and Jill Siragusa
Clark Cutler: Scott ...
It is with our deepest condolences that we recognize members of our ULF family that have passed in 2019. Rettenmeier, Amy (September 26, 1991 - September 19, 2019)
The ULF received donations in memorial or honorarium for the following during the month of August 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Gregory Brown: Brownie’s Pro and Sports Hobbies Shop, James and Lois ...
The ULF received donations in memorial or honorarium for the following during the month of July 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Neil Kushnick: Jerome and Nancy Kushnick
Alex Leef: Forrest Leef
Jackson ...
The ULF received donations in memorial or honorarium for the following during the month of June 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Alex Bouley: Bernard Levine and Alice Howard
Gregory Brown: Brownie’s ...
Would you like your first name to be listed with other leukodystrophy families on the back of a t-shirt?
We would like to include as many names as possible to show the strength of our community! A variety of shirt colors and styles will be available for purchase through Bonfire.com in ...
The ULF received donations in memorial or honorarium for the following during the month of May 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Bobby Bellendir: Thomas and Mary Lou Rioux
Chris Bellendir: Thomas ...
by John Wolf
The ULF has been a part of my life for nearly 14 years. My involvement began shortly after my daughter, Ashley was diagnosed at the age of 10 with Cerebrotendinous Xanthomatosis (CTX) in 1994. After the initial shock of the diagnosis wore off, we took it upon ourselves ...
by Colleen Kintner
Kristy was 6 years of age when she was diagnosed with Metachromatic Leukodystrophy.
We felt very lost and alone. We were blessed to have a quick diagnosis because Kristy's pediatrician had studied with one of the experts here in California at UCLA. Bill looked up articles about leukodystrophy and the name ...
by Annika Jorgensen
I am his mother (from Sweden) and he has an American father, Marcy. We have two daughters Amanda and Johanna, who are both older than Nicki. We were divorced before Nicki turned ill and his father lives in the States. When we were married, I lived in the ...
