Aidan Jack Seeger Foundation
Sat06Jun2020Sun07Jun2020Alton Towers in Alton, Staffordshire, England
A weekend break to this theme park based in Staffordshire will be lots of fun for all the family with over 40 rides and attractions to enjoy.
Thu11Jun2020Fri12Jun2020201 North 17th Street, Philadelphia, Pennsylvania, United States of America
Global Genes, in partnership with the Orphan Disease Center at the University of Pennsylvania School of Medicine
The expert meeting will bring together all the knowledge from across the lysosomal storage disease and other rare disease community to share information and understanding, to find out where the gaps in knowledge are and to find out how we can fill these gaps. Open to experts only.
Contact us for more
Fri19Jun2020Birmingham Children's Hospital, Steelhouse Ln, Birmingham B4 6NH, UK
Clinics allow individuals affected by MPS, Fabry and or a related disease to see a specialist consultant and, where possible, other medical professionals on the same day. This reduces the need to attend a number of separate appointments. Clinics also enable individuals and families to meet with one another as well as with members of the support and advocacy team who also attend the clinics.