Saturday, February 24, 2018 at 10:00 a.m. CST
You will be able to login starting at 9:30 a.m. CST
A question and answer session will follow the presentation. For more information, contact Albee Messing at 608.263.9191 or email@example.com.
The ULF received donations in memorial or honorarium for the following during the month of January 2018. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at firstname.lastname@example.org or by calling 815.748.3211.
MaryAnn Backenson: Bryon and Kathleen Backenson
Robby Backenson: Bryon and Kathleen Backenson
Zenko Bihun: Oleh and ...read more
Buy tickets for a chance to win a Disney vacation for 4!
DEKALB, IL – February 1, 2018 – Support the United Leukodystrophy Foundation with the purchase of a Magical Memories Disney Raffle ticket. The winner of the raffle will receive $1,050 in Disney gift cards redeemable toward admission, food or ...read more
It is with our deepest condolences that we recognize members of our ULF family that have passed in 2018.
Tom, age 50, proceeded in death by his twin brother Tim in 2008. Both who had PMD leukodystrophy, were adopted at age 6 weeks by mother Sharon Spears and her former ...read more
Spread the word about Leukodystrophy in your community AND support medical research with the purchase of our newest t-shirt design. Multiple colors and sizes available!
All proceeds will support vital medical research!
By partnering with Bonfire, we are able to fundraise as well as have the printing and distribution of the ...read more
It is with our deepest condolences that we recognize members of our ULF family that have passed in 2016.
Alm, Stanley Lester
Boswell, Elizabeth (Betty) Carpenter
Brenner, Michael H.
Brown, George W., Jr.
Clark, Liam David
Conroy, Geoffrey Leland
Cooper, Deborah Ann
Hagan, David Weldon
Haber, Jay Howard
Hanuscin, Agnes Hrusovsky
Kieffer, Nora St. Marian Goretti
Lipe, ...read more
It is with our deepest condolences that we recognize members of our ULF family that have passed in 2017.
Bloxom, Thomas Duane
Borodychuk, Olivia Kay
Cooper, Kelly Joyce
Dean, Kolton Kyle
Devers, Tyler Michael Caine
Engbers, Gabriel Jordan
Ewen, Barbara M.
Harris, Rick Lee
Maloney, William "Bill" Michael
Moore, Latavia Michelle Moore
Moore, ...read more
The ULF received donations in memorial or honorarium for the following during the month of December 2017. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at email@example.com or by calling 815.748.3211.
Ramon Pollosco Abanilla: Melodie Carver
Ted Abernathy: Christopher and Jill Johnson
Michael Alm: Jeffrey Alm
Thomas Andre: David ...read more
Every year, the ULF puts a call out to the leukodystrophy medical professional community asking for research proposals in need of funding. The number of grant applications have consistently grown in the past years, and this year was no exception.
Submissions from all over the country as well as internationally were ...read more
This year's Annual ULF Benefit Drawing winners have been chosen!
We had a special Halloween visitor to the office this year to pull the winning tickets: 2-year-old Clark dressed up as Carl from the movie UP!
The winners are...
• $500 Visa Gift Card - Patrick M. of Virginia
• Rolling iPad Stand ...read more