Worldwide, MLD occurs in 1 in 40,000 people, primarily children. Early symptoms of MLD include trouble walking, impaired speech, and muscle weakness.
The Embolden Study is conducting research for infants and children born with metachromatic leukodystrophy.
Study overview:
The Embolden Study is evaluating the safety and effects of a study drug on gross ...
The ULF received donations in memorial or honorarium for the following during the month of March 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211.
IN HONOR OF
Alex Bouley: Terry and Kelly Smith
Brazeal Family: Patrick and ...
The ULF received donations in memorial or honorarium for the following during the month of February 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Carter Bowman: Katie and Clay Bowman
Peter Brownlee: Olinda Kober
Alec ...
The ULF received donations in memorial or honorarium for the following during the month of January 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Gregory Brown: John and Carol Brown, Mary Wheeler
Clark Cutler: ...
Buy tickets for a chance to win a Disney vacation for 4!
Support the United Leukodystrophy Foundation with the purchase of a Magical Memories Disney Raffle ticket. The winner of the raffle will receive $1,050 in Disney gift cards redeemable toward admission, food or souvenirs; 4-night stay in one standard guest ...
The ULF received donations in memorial or honorarium for the following during the month of December 2018. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Peter and Mary Ann Backenson: Thomas and Brooke Backenson
Alex ...
The VWM Registery is officially open! The Center for Childhood White Matter Disorders at the VU University Medical Center (VUmc) in Amsterdam, The Netherlands, has developed an online Registry for patients with Vanishing White Matter (VWM). The aim of the Registry is to collect as much insight in the disease ...
The ULF received donations in memorial or honorarium for the following during the month of November 2018. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Liam Becker: Amy Becker
Nathan and Kathryn Borge: John and Karen Sheahan
Alex ...
The ULF received donations in memorial or honorarium for the following during the month of October 2018. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Gregory Brown: John and Carol Brown
Tory Brown: Julie Brown
Zane Dial: Michael and ...
The ULF received donations in memorial or honorarium for the following during the month of September 2018. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211.
IN HONOR OF
Alex Bouley: Bernard and Alice Howard Levine
Elizabeth DeSpelder Rawlins: Daniel Lombardo and Karen ...
