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We are Hiring!

Are you experienced at development and fundraising and looking to work for a mission driven organization? With the ability to work remotely, the United Leukodystrophy…
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Axel Riordan, MLD

By Alexandra Worth Axel Riordan was born October 15, 2017. He was a healthy growing boy, hitting all his milestones on time. Around 18 months…
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Shari S., ALD

Being part of a family that has endured the devastation of ALD since 1959 when my mother’s brother lost his battle and then losing both…
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Amera Reed, ACER3

by Shannon Reed Amera is our sweet 3 year old daughter who battles an extremely rare genetic disease called ACER3 related early childhood onset progressive …
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