The ULF Family Assistance Program

Aaron Hultman (ALD), 1995-2004

Overview

Thanks to a generous donation by the Hultman family, the ULF has established a memorial fund that is intended to provide financial assistance to leukodystrophy-affected families who are struggling to pay expenses directly related to the affected family member.

Eligibility

To be considered, a family must complete and submit an application form and demonstrate:

  • Financial hardship – includes but not limited to; change in income, medical related expenses, and overall financial need.  Note: Detailed information supporting the need, related to the affected family member, must be included.
  • Proof of USA Residency – US citizenship is not required, but we are only granting funds to USA residents.
  • Proof of leukodystrophy diagnosis – examples include a letter from a physician, test results with diagnosis noted in comments, etc.

Grant Details

  • Grants will vary based on the financial need/ situation.
  • A max of $500.00 USD, per affected family, is allowed per grant.
  • Funds will be sent via a hard-copy written check.
  • A family can receive no more than one grant in a 12-month period.   

Important Notes

  • Applications will be reviewed by the Hultman Committee four times per year. Deadline dates to apply for 2022 are: April 1, July 1, October 1, and December 1.
  • Families that receive a grant are not eligible for an additional grant for one rolling calendar year, and each application will be considered separately.
  • The information and documentation that families submit will not be shared beyond the Hultman Committee and ULF managing staff.
  • Questions about the Hultman Family Assistance Program should be directed to the ULF Executive Director, Chris Rice via email at ChrisRice@ulf.org.
Citizenship is not required; we are only able to mail funds to people who reside in the U.S.A.
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Click or drag files to this area to upload. You can upload up to 5 files.
Up to 5 file uploads allowed, must be .jpg, .jpeg or .pdf

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