Listed below are a few of the many websites related to leukodystrophy. These links can help you research the topic and find support.
General Leukodystrophy Links
- AMN: VLCFA, They are the Enemy. The Joys of Adrenomyleoneuropathy.
- Clinical Trials.gov
- The Cord Blood Registry Cord Blood Banking
- Doctor Listing – Castle Connolly
- The Gene Home – Bluebird Bio
- Gene Therapy
- Genetic Alliance
- Hereditary Motor Sensory
- Hide & Seek Foundation
- Kennedy Krieger Institute
- Leukodystrophy Family Forum
- MEDLINE Plus
- National Institutes Of Health
- National Library of Medicine
- National Organization of Rare Diseases
- NINDS-National Institute of Neurological Disorders and Stroke
- X-linked Adrenoleukodystrophy Database
Resources for Disabilities
Do you know of a resources that you have found helpful and think should be listed here? Please e-mail email@example.com!