Resources

Listed below are a few of the many websites related to leukodystrophy. These links can help you research the topic and find support.

General Leukodystrophy Links

• AMN: VLCFA, They are the Enemy. The Joys of Adrenomyleoneuropathy.
• Clinical Trials.gov
• The Cord Blood Registry Cord Blood Banking
• Doctor Listing – Castle Connolly
• The Gene Home – Bluebird Bio
• Gene Therapy
• Genetic Alliance
• Hereditary Motor Sensory
• Hide & Seek Foundation
• Kennedy Krieger Institute
• Leukodystrophy Family Forum
• MEDLINE Plus
• National Institutes Of Health
• National Library of Medicine
• National Organization of Rare Diseases
• NINDS-National Institute of Neurological Disorders and Stroke
• X-linked Adrenoleukodystrophy Database

Resources for Disabilities

• Canine Companions for Independence
• Disability Information and Resources
• The Mobility Resource

Do you know of a resources that you have found helpful and think should be listed here? Please e-mail office@ulf.org!