Listed below are a few of the many websites related to leukodystrophy. These links can help you research the topic and find support.
Join the conversation and chat with others who are affected by leukodystrophy at Inspire.
General Leukodystrophy Links
- AMN: VLCFA, They are the Enemy. The Joys of Adrenomyleoneuropathy.
- Clinical Trials.gov
- The Cord Blood Registry Cord Blood Banking
- Doctor Listing – Castle Connolly
- The Gene Home – Bluebird Bio
- Gene Therapy
- Genetic Alliance
- Hereditary Motor Sensory
- Hide & Seek Foundation
- Kennedy Krieger Institute
- Leukodystrophy Family Forum
- MEDLINE Plus
- National Institutes Of Health
- National Library of Medicine
- National Organization of Rare Diseases
- NINDS-National Institute of Neurological Disorders and Stroke
- X-linked Adrenoleukodystrophy Database
Resources for Disabilities
Do you know of a resources that you have found helpful and think should be listed here? Please e-mail firstname.lastname@example.org!