2022 Scientific Symposium

Join us at the Eaglewood Resort and Spa on Thursday, June 23rd!

The Scientific Symposium is back in-person! We are thrilled to be hosting at the Eaglewood Resort and Spa again this year, and we cannot wait to see you! Registration is now open! We will post updates on this page as we continue to finalize information about this year’s event, so please check back regularly!

View the Agenda!
Subject to Change

What we know so far…
— We encourage you to arrive on Wednesday, June 22nd, as sessions will begin at 8 AM on Thursday.
— Your registration fee includes access to the Family Conference held on Friday and Saturday, June 24th and 25th.
— The ULF has a discounted room rate of $132 per night at the Eaglewood. Book your room here, or call (630) 773-1400 and mention the ULF room block!
— If you are flying, we strongly suggest flying into O’Hare International Airport which is only 20 minutes from the hotel. Midway Airport is approximately 45-60 minutes, and taxi fare or ride share could cost as much as $200 one-way.
— If you are driving, there is open air, free parking available to guests of the hotel.
— Registration fees will be announced prior to April 4th. Your registration fee includes 10 meals during the event: breakfast, lunch and dinner on Thursday, Friday and Saturday, and breakfast on Sunday. We will ask for any dietary restrictions during the registration process. If you require a kosher meal, please reach out to Keely Mata at keely@ulf.org as there is an additional fee.

Health and Safety Precautions

Click here to view the complete Health & Safety Measures for this year’s in-person events.

In order to protect the health and safety of our community, COVID-19 vaccination will be required to attend the in-person meeting. We are following the guidance of our Medical and Scientific Advisory Board, and the CDC‘s guidelines. Proof of vaccination will be submitted to the ULF prior to arrival at the hotel, and any walk-in attendees will need to present proof of vaccination before attending any sessions. The ULF will also require adequate masks (N95 or KN94) be worn at all times. Please bring your own mask to the event. Additional details about health and safety measures will be posted prior to registration opening so that families can feel secure in their decision to attend this year’s meeting. Questions or concerns regarding these precautions can be directed to office@ulf.org, or by calling the office at 815-748-3211.

Virtual Access

The Scientific Meeting will be streamed, but not recorded. If you cannot join us in person, we invite you to log in to our stream of the presentations on Thursday, June 23rd. To protect the intellectual property of the presenters, the meeting will not be recorded or available for viewing following the event. There will be no refunds of virtual access registration fees.


The Scientific Symposium is a meeting for research, medical, and industry professionals. The one-day meeting takes place on the day before the Family Conference and allows physicians, researchers, and more to share projects, discuss ideas, and network in a professional setting.

At this time, the Scientific Meeting is only open to scientific professionals. Affected individuals and families who are not scientific professionals are more than welcome to join us at the Family Conference. Information that is open for public discussion is shared at the Family Conference by the professional community and allows for discussion and questions on a more intimate and personalized level. The Scientific Symposium is reserved for medical professionals to speak and network among peers.

Admission to the Scientific Symposium is $300 per person. This fee includes admission to all three days of the ULF Conference: the single day of Scientific Symposium, and the two days of Family Conference. All ten meals from Thursday to Sunday breakfast are included in the admission price as well. When held virtually, prices for registration are: $25 for students and allied health professionals, $50 for medical professionals (MDs, PhDs, etc.), and $250 for pharma/industry representatives.

If you have any questions, please reach out to the ULF by email at office@ulf.org, or by calling 815-748-3211.

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