Save the date for 2024!

Thursday, June 27
Your registration to the Scientific Symposium includes entry to the Family Conference held on Friday, June 28 and Saturday, June 29!
Eaglewood Resort and Spa
Itasca, Illinois, USA
(accessible by O’Hare International Airport)


The Scientific Symposium is a meeting for research, medical, and industry professionals. The one-day meeting takes place on the day before the Family Conference and allows physicians, researchers, and more to share projects, discuss ideas, and network in a professional setting.

At this time, the Scientific Meeting is only open to medical and scientific professionals. Affected individuals and families who are not scientific professionals are more than welcome to join us at the Family Conference. Information that is open for public discussion is shared at the Family Conference by the professional community and allows for discussion and questions on a more intimate and personalized level. The Scientific Symposium is reserved for medical professionals to speak and network amongst peers.

If you have questions, email, or call 815-748-3211.