Save the Date for 2023

June 22
Eaglewood Resort and Spa
Itasca, IL (near Chicago)


The Scientific Symposium is a meeting for research, medical, and industry professionals. The one-day meeting takes place on the day before the Family Conference and allows physicians, researchers, and more to share projects, discuss ideas, and network in a professional setting.

At this time, the Scientific Meeting is only open to scientific professionals. Affected individuals and families who are not scientific professionals are more than welcome to join us at the Family Conference. Information that is open for public discussion is shared at the Family Conference by the professional community and allows for discussion and questions on a more intimate and personalized level. The Scientific Symposium is reserved for medical professionals to speak and network among peers.

Admission to the Scientific Symposium is $300 per person. This fee includes admission to all three days of the ULF Conference: the single day of Scientific Symposium, and the two days of Family Conference. All ten meals from Thursday to Sunday breakfast are included in the admission price as well. Virtual attendance prices for registration are around; $25 for students and allied health professionals, $50 for medical professionals (MDs, PhDs, etc.), and $250 for pharma/industry representatives.

If you have questions, please reach out to the ULF by email at, or by calling 815-748-3211.

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