One of the founding principles of the ULF is to support those who are affected by leukodystrophy. While the United Leukodystrophy Foundation supports all types of leukodystrophy, some families may benefit from leukodystrophy specific information. We believe finding a cure is the answer, working together is the first step.

These foundations are not directly affiliated with the United Leukodystrophy Foundation.  

4H/POLR3-Related Leukodystrophy

ALD/X-ALD/AMN: Adrenoleukodystrophy/Adrenomyeloneuropathy 

Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP, formerly HDLS)

AGS: Aicardi-Goutieres Syndrome


AxD: Alexanders Disease

CADASIL: Cerebral Arteriopathy with Subcortical Infarcts and Leukoencephalopathy

Canavan Disease

CTX: Cerebrotendinous xanthomatosis

H-ABC: Hypomyelination with Atrophy of Basal ganglia and Cerebellum

Krabbe Disease

LBSL: Leukoencephalopathy with Brain Stem and Spinal Cord Involvement and Lactate Elevation

HBSL: Hypomyelination with Brain Stem and Spinal Cord Involvement and Leg Spasticity

MLD: Metachromatic Leukodystrophy

PMD: Pelizaeus-Merzbacher Disease

Refsum Disease

SLS: Sjogren-Larsson Syndrome

CACH: Vanishing White Matter Disease

ZSD: Zellweger Spectrum

Other Broad Leukodystrophy Foundations and Resources:

Do you know of a disease specific resource that should be listed here? Please e-mail

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