Every year, the ULF welcomes researchers from all over the world to submit their project proposals for funding. Applications are accepted from June 1 to the beginning of October. The Medical and Scientific Advisory Board’s Grant Committee reviews the applications during October and November, and the applicants are informed of their decision in December. Applicants will be notified of their application status following the December Board Meeting, which is held on the second Monday of the month.
Applications involving any of the leukodystrophies with budgets up to $30,000 (plus up to 10% indirect costs) are welcome to apply. The ULF Medical and Scientific Advisory Board will review applications for scientific merit, feasibility, and likelihood to advance the field. Funding will be awarded by the end of December 2022 and extend for one year.
Researchers must use the ULF Research Grant Application and submit applications electronically to email@example.com. Funded investigators will be invited to present their research at a future ULF Scientific Symposium in the Chicagoland area.
Applications must be submitted by October 4, 2022.
ULF-Funded Research Projects
in grant money
awarded to date
22 Projects Supported
Global Impact, projects
are funded domestically & internationally
The ULF began funding research projects in 2010. So far, the ULF has funded over $450,000 in leukodystrophy research projects. Thanks to a generous donation from Hugo and Ann Moser, we were able to establish an endowment that generates the funds that we allocate for research every year. If you make a donation to the foundation that is research restricted, this is where your funds go! Every year, we take a look at how much has been donated to the research endowment in general, and for specific types, and that guides our Grant Committees decisions on who will receive funding. If type specific funds are left over from year to year, we allow the specific funds to grow until a project that is worthy of funding comes around.
*Project funds with an asterisk designate a project that was funded with donations specifically allocated for that type of leukodystrophy.
|2021||Vivi Heine||Amsterdam UMC||Cerebral ALD (cALD)||$30,000*|
|2020||Akshata Almad||Children's Hospital of Philadelphia||Aicardi-Goutieres Syndrome||$33,000|
|2020||Thomas Durcan||McGill University||Vanishing White Matter||$16,500|
|2020||Keith Van Haren||Stanford University Medical Center||Cerebral ALD (cALD)||$16,500|
|2019||Amer Alam||University of Minnesota||ALD||$33,000|
|2019||Joshua Bonkowsky||University of Utah||ALD||$13,000*|
|2019||Markus Hofer||University of Sydney, Australia||AGS||$33,000|
|2019||Paul Watkins||Kennedy Krieger Institute||ALD||$8,671*|
|2018||Alessandro Michienzi||University of Rome, Italy||AGS||$33,000|
|2018||Amy Waldman||Children's Hospital of Philadelphia||Alexander Disease||$33,000|
|2017||Ernesto Bongarzone||University of IL at Chicago||Krabbe||$33,000|
|2017||Reena Kartha||University of MN||ALD||$15,000*|
|2017||Mark Sands||Washington University (Kansas)||Various||$33,000|
|2017||Natasha Snider||University of NC at Chapel Hill||Alexander Disease||$33,000|
|2016||Tracy Hagemann||University of WI||Alexander Disease||$33,000|
|2016||Quasar Padiath||University of Pittsburgh||ADLD||$33,000|
|2016||Deborah Renaud||Mayo Clinic||AMN||$3,841|
|2015||Adeline Vanderver||Children's National Health System||Various||$20,000|
|2015||Weston Mille||University of MN||ALD||$6,000|
|2015||Ian Duncan||University of WI||PMD||$35,000|
|2014||Ian Duncan||University of WI||PMD||$35,000|
|2014||Fabrice Dabertrand||UVM College of Medicine||CADASIL||$25,000|
|2010||Phyllis Faust||Columbia University||Zellweger||$5,000|