ULF Research Grant Program

Every year, the ULF welcomes researchers from all over the world to submit their project proposals for funding. Applications are accepted from June 1 to the beginning of October. The Medical and Scientific Advisory Board’s Grant Committee reviews the applications during October and November, and the applicants are informed of their decision in December. Applicants will be notified of their application status following the December Board Meeting. 

Applications involving leukodystrophies research with budgets up to $30,000 (plus up to 10% indirect costs) are welcome to apply. The ULF Medical and Scientific Advisory Board will review applications for scientific merit, feasibility, and likelihood to advance the field. Funding will be awarded by the end of December and extend for one year. 

To apply: Download Applicaiton and submit Grant Application electronically to office@ulf.org.

Funded investigators will be invited to present their research at a future ULF Scientific Symposium in the Chicagoland area. 

Deadline is Tuesday, October 1, 2024. All applicants will receive notification on the status of their submission by December 20, 2024.

ULF-Funded Research Projects

$ 765,452.00
in grant money
awarded to date

30 Projects Supported

Global Impact, projects
are funded domestically & internationally

The ULF began funding research projects in 2010. So far, the ULF has funded over $682,000 in leukodystrophy research projects. Thanks to a generous donation from Hugo and Ann Moser, we were able to establish an endowment that generates the funds that we allocate for research every year.

If you make a donation to the foundation that is “research restricted,” this is where your funds go! Every year, we take a look at how much has been donated to the research endowment (general or specific leuko) to guide where the funds accurately.

*Project funds with an asterisk designate a project that was funded with donations specifically allocated for that type of leukodystrophy.

YEARRESEARCHERINSTITUTIONLD TYPEAMOUNT
2023Daniel SegalTel-Aviv UniversityKrabbe$33,000
2023Marjo van der KnaapAmsterdam UMCVWM$30,000*
2023Ann MoserKennedy Krieger InstituteVarious$20,000
2022Cristina CeredaASST Fatebenefratelli Sacco, "V. Buzzi" Children’s HospitalAGS$33,000
2022Ann MoserKennedy Krieger InstituteVarious$20,000
2022Marjo van der KnaapAmsterdam UMCVWM$31,940*
2021Vivi HeineAmsterdam UMCCerebral ALD (cALD)$30,000*
2021Marjo van der KnaapAmsterdam UMCVWM$38,000*
2020Akshata AlmadChildren's Hospital of PhiladelphiaAicardi-Goutieres Syndrome$33,000
2020Thomas DurcanMcGill UniversityVanishing White Matter$16,500
2020Keith Van HarenStanford University Medical CenterCerebral ALD (cALD)$16,500
2019Amer AlamUniversity of MinnesotaALD$33,000
2019Joshua BonkowskyUniversity of UtahALD$13,000*
2019Markus HoferUniversity of Sydney, AustraliaAGS$33,000
2019Paul WatkinsKennedy Krieger InstituteALD$8,671*
2018Alessandro MichienziUniversity of Rome, ItalyAGS$33,000
2018Amy WaldmanChildren's Hospital of PhiladelphiaAlexander Disease$33,000
2017Ernesto BongarzoneUniversity of IL at ChicagoKrabbe$33,000
2017Reena KarthaUniversity of MNALD$15,000*
2017Mark SandsWashington University (Kansas)Various$33,000
2017Natasha SniderUniversity of NC at Chapel HillAlexander Disease$33,000
2016Tracy HagemannUniversity of WIAlexander Disease$33,000
2016Quasar PadiathUniversity of PittsburghADLD$33,000
2016Deborah RenaudMayo ClinicAMN$3,841
2015Adeline VanderverChildren's National Health SystemVarious$20,000
2015Weston MilleUniversity of MNALD$6,000
2015Ian DuncanUniversity of WIPMD$35,000
2014Ian DuncanUniversity of WIPMD$35,000
2014Fabrice DabertrandUVM College of MedicineCADASIL$25,000
2010Phyllis FaustColumbia UniversityZellweger$5,000