The ULF’s Annual Scientific Symposium welcomes research and medical professionals, pharma/biotech representatives, advocacy leaders, and student scientists/clinicians.

The Scientific Symposium is a gathering of the leukodystrophy community’s most prominent researchers and clinicians from around the world. It hosts a full-day session that is planned by ULF’s Medical and Scientific Advisory Board. The Scientific Symposium is designed as a forum for research and medical professionals to discuss their latest research and treatment efforts, so it is limited to patient advocacy leaders to attend. An in-depth summary in layperson’s terms will be provided at the Family Conference on Friday.

Patients, families, and supporters affected by leukodystrophy are invited to join the Family Conference on June 24-26, 2027 for education and support.

The ULF Annual Family Conference is a platform for education, collaboration, and advocacy. Families affected by leukodystrophy who attend the conference have access to the world’s most respected and knowledgeable leukodystrophy experts. The conference will provide a well-rounded educational experience aimed at empowering affected families.