Ambassadors & Resources

The ULF is working to establish a communication network among families at a state level to complement the ULF’s mission and vision. In the near future, we will be looking for state ambassadors who will work with our ULF Committee to inform ULF of their constituencies’ activities and needs, ensure consistent messaging and calls to action, and to advise on training and educational initiatives for members and key officials.

Take Action & Join the Movement 

The ULF State Ambassador and Communication Network will connect grassroots supporters across the country to advocate for families diagnosed with a form of leukodystrophies.

State and local activities may include support groups, regular informational meetings, resource libraries, fundraising opportunities, advocacy assistance, newsletters, annual conferences and opportunities to network with other parents, spouses, professionals, adults and affected individuals with leukodystrophies.

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