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Leukodystrophy Awareness Month

1 event,

2 events,

Cure GM1 International GM1 Virtual Community Conference

2 events,

Cure GM1 International GM1 Virtual Community Conference

1 event,

3 events,

Global Genes LIVE! A RARE Patient Advocacy (un)Summit

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“Unlock CTX”

3 events,

Cure GM1 International GM1 Virtual Community Conference

3 events,

2 events,

4 events,

RDLA September 2021 Webinar

Lessons From the field

5 events,

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CTX Family Forum

Cure GM1 International GM1 Virtual Community Conference

2021 Pediatric Palliative Care WebinarsBeyond Words: Using Expressive and Integrative Therapies as Communication Tools

1 event,

2 events,

Global Genes LIVE! A RARE Patient Advocacy (un)Summit

5 events,

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ULF Support Group: Siblings of Affected People

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ULF Support Group – Caregiving Spouses

4 events,

Cure GM1 International GM1 Virtual Community Conference

ALSP Community Support Group Meeting

Bethanys Hope Foundation – The Dinner – Charity Gala

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